The first question comes from Shawn, the father of a 14-year-old with CF. “Throughout [my son’s] life we have provided him with information that we felt was appropriate for his age; however, he is gaining more knowledge, a lot which can be hard for a young kid. What advice can you offer and what can be helpful at this age?” Continue reading Ask Gunnar # 4
Do you have questions for our CF Roundtable columnists?
The US Adult CF Assn (USACFA) publishes CF Roundtable. USACFA’s directors consist of all adults with CF. Some of our columnists, although not directors, make up an important part of USACFA and CF Roundtable. Continue reading Ask Your Questions–From Jeanie Hanley
All right, so here we go with the second round of “Ask Gunnar.” We are going to stick with that name until I can figure out something a little better – my family friendly creativity only goes so far at the moment. Remember, you can always ask a question (about CF or anything for that matter) by Continue reading Gunnar Esiason: Own It–Ask Gunnar
Just Breathe: Adults living with Cystic Fibrosis is a newly released book that captures the human experience of Cystic Fibrosis through a series of simple, yet complex portraits of adults living with the disease. Readers will find themselves transfixed as each page brings a new face, challenging the Continue reading Newly Released Book, “Just Breathe: Adults Living With Cystic Fibrosis,” Provides Depth & Beauty to the Story of CF
CF Roundtable readers want to learn from your experience dealing with having CF. Share your unique journey with how you managed your health, lived your life, reached your personal milestones. You will help inspire others to achieve their goals and give hope to those struggling. Tell us what you enjoy, what makes you laugh or cry or who motivates you. How do you make it through the tough times? Help us be the best we can by contributing your story to In The Spotlight. If interested, contact us at: firstname.lastname@example.org
Download Jerry’s Books to Your Kindle Today!
Tru Heros, A-Z
You Cannot Fail
Jerry: The Boy Who Could Not Fail
Visit http://bit.ly/JerryAmazon to purchase and download any or all of his books today.
Elizabeth Scarboro’s memoir, My Foreign Cities, about her marriage to her first husband who had CF, has just been released in paperback.
Ana Stenzel reviewed the book for CF Roundtable last Spring. She wrote:
“My Foreign Cities is a much-needed book for the CF community. Sharing her Continue reading Now out in paperback, My Foreign Cities
Please check out the link to The Huffington Post to read published writer Elizabeth Scarboro’s experience with a a great CF Doctor. Some of us might take it for granted that this is everyone’s experience with doctors but it is just not so.
I met Dr. Stulbarg when I was 22, and had just moved to San Francisco to be with my boyfriend Stephen. Stephen had cystic fibrosis, but he’d been unusually healthy as long as I’d known him. Then, three weeks after my arrival, on a Saturday night, his lung Continue reading Anatomy of an Excellent Doctor, By Elizabeth Scarboro
My children’s book is coming out in late January, “Jerry, The Boy Who Could Not Fail”, and you can pre-order ($7.95) by emailing me: email@example.com. All book sales go to the Boomer Esiason Foundation for the YOU CANNOT FAIL scholarship for people with cystic fibrosis.
my email is: firstname.lastname@example.org
We are VERY excited to announce the arrival of the Breathing Room book.
The book is a collection of the images and writings from “Through the Looking Glass: Images of Adults with Cystic Fibrosis” and “Caregiver Stories”, as well as biographies of the participants and photographers. You will also find messages from our executive director, Michelle Compton Continue reading The Breathing Room Book is Now Available!