Please check out the link to The Huffington Post to read published writer Elizabeth Scarboro’s experience with a a great CF Doctor. Some of us might take it for granted that this is everyone’s experience with doctors but it is just not so.
I met Dr. Stulbarg when I was 22, and had just moved to San Francisco to be with my boyfriend Stephen. Stephen had cystic fibrosis, but he’d been unusually healthy as long as I’d known him. Then, three weeks after my arrival, on a Saturday night, his lung Continue reading Anatomy of an Excellent Doctor, By Elizabeth Scarboro
My children’s book is coming out in late January, “Jerry, The Boy Who Could Not Fail”, and you can pre-order ($7.95) by emailing me: firstname.lastname@example.org. All book sales go to the Boomer Esiason Foundation for the YOU CANNOT FAIL scholarship for people with cystic fibrosis.
my email is: email@example.com
We are VERY excited to announce the arrival of the Breathing Room book.
The book is a collection of the images and writings from “Through the Looking Glass: Images of Adults with Cystic Fibrosis” and “Caregiver Stories”, as well as biographies of the participants and photographers. You will also find messages from our executive director, Michelle Compton Continue reading The Breathing Room Book is Now Available!
A book of original poems, quotes, anecdotes and stories penned by those living with Cystic Fibrosis, those who have succumbed to the disease, and those who share and have shared their lives with those who have Cystic Fibrosis. We are accepting original written work to be included in this book. Continue reading An Open Invitation For Submissions Of Original Written Works