Introducing ‘This Lung Life,’ a Column by Ella Balasa

Below is the first post of an original column that will be published once monthly. Enjoy!

Fulfillment to me means achieving a dream, pursuing a passion, striving to be happy every day, and finding joy in what I do. To say I did my best and made every moment count. I believe having those dreams and feelings of fulfillment comes from motivation. Motivation to do and be better in whatever parameters I set for myself. My motivation for life comes in the most innate form — the will to live. To live the fullest life I can, in the time I am given to live it.

Having cystic fibrosis has shaped me to want to live in this way. My motivation to Introducing ‘This Lung Life,’ a Column by Ella Balasahave this attitude has grown with each passing year, though it’s taken time to gain the maturity, experiences, and confidence to find my identity and purpose.
Continue reading Introducing ‘This Lung Life,’ a Column by Ella Balasa

We want to hear from you! CF Roundtable article submission deadline soon

CF Roundtable Article submissions are due December 15th.

The Focus Topic for the Winter 2018 issue is “Becoming A Parent With CF”.  If you – our adult readers with CF – have thought about becoming a parent, what decisions and considerations did you make? Are you a parent or do you help raise a nephew, niece or another child relative? Whether you already have children or want to start a family, tell us about your journey to parenthood.

Continue reading We want to hear from you! CF Roundtable article submission deadline soon

A Tribute to Everyone with Cystic Fibrosis

Dear CF Roundtable Blog readers,

I would like to share a drawing that I recently created. Occasionally, in my spare time, between four treatments a day, working, cooking food, attempting exercise, and the intermittent phone call or meet up with friends, I hone my artistic skills. In all honesty, it is maybe every few months, but when I do create something, it brings me much pleasure. Cystic fibrosis, the greatest blessing and the greatest curse in my life, obviously affects me daily yet provides the most inspiration.

Continue reading A Tribute to Everyone with Cystic Fibrosis

“There Are No Alligators in Heaven!” Scores 4-star Review from Portland Books

https://www.benzinga.com/pressreleases/17/09/p10005705/there-are-no-alligators-in-heaven-scores-4-star-review-from-portland-b

Portland Books Editor-in-Chief Whitney Smyth calls the remarkable story of a family wrestling with cystic fibrosis, “a book that manages to be many things: a heartfelt biography … a Continue reading “There Are No Alligators in Heaven!” Scores 4-star Review from Portland Books

You can write for CF Roundtable!

Submit your article by September 15th, 2017 to be included in the autumn issue.

CF Roundtable thrives on articles written by our columnists, directors and you! If you would like to share your story or an experience of dealing with life and CF, we would welcome it. Articles can be any length, Continue reading You can write for CF Roundtable!

Deadline for article submissions for CF Roundtable is June 15th, 2016

The CF Roundtable thrives on articles written by our columnists, directors and you! If you would like to share your story or an experience of dealing with life and CF, we would welcome it. Articles can be any length, generally Continue reading Deadline for article submissions for CF Roundtable is June 15th, 2016

Small World by Mark Levine

I couldn’t believe it. I was walking around the pool at a resort in Mexico and I noticed a woman reading a newsletter that looked very familiar.  As the subscription manager of the CF Roundtable, I know that we send out less than 1300 copies around the world per quarter. The odds seemed slim Continue reading Small World by Mark Levine

Please complete the CF Roundtable Survey

You have just a few days left to respond to the CF Roundtable Survey. Please take the survey by Sunday, April 10th, if you haven’t yet had a chance to respond. CF Roundtable, written by and for adults with CF, is your newsletter.  Our readership is expanding and your voice is very important!

Here is the link to the 5 minute survey:
https://www.surveymonkey.com/s/CFRoundtable

Ask Your Questions to CF Roundtable

Do you have questions for our CF Roundtable columnists?

The US Adult CF Assn (USACFA) publishes CF Roundtable. USACFA’s directors consist of all adults with CF. Some of our columnists, although not directors, Continue reading Ask Your Questions to CF Roundtable

Help us get our badge for GreatNonprofits: write a review!

Dear Friends of CF Roundtable and the US Adult CF Assn (USACFA),

If you love our work then tell the world! You have an opportunity to help us make even more of a difference in our community. GreatNonprofits-a review site like TripAdvisor-is honoring highly reviewed nonprofits with their 2016 Top-Rated Awards. Won’t you help us raise visibility for our work by posting a Continue reading Help us get our badge for GreatNonprofits: write a review!