My name is Erin Lowery, and I am an adult Cystic Fibrosis physician and assistant professor at Loyola University Chicago. My research focuses on alcohol use in people with lung disease, and I would like to better understand alcohol use in people with cystic fibrosis. I have been working with the CFF on a research project which involves looking at alcohol use in people with CF and how it impacts their health. As a first step in this project, we have created an anonymous survey. I hope that it gives us some insight into how people with CF are using alcohol and if it affects their health. Continue reading Alcohol Usage in CF Population Survey Opportunity
The Cystic Fibrosis Foundation has announced the recipients of its second annual Impact Grants. The Impact Grants Program provides funding to unique projects by and for people with cystic fibrosis (CF) and their family members. CF is a rare, genetic disease that progressively limits the ability to breathe and ultimately causes premature death.
In this Cystic Fibrosis Wind Sprint, Jerry Cahill talks about the importance of never missing your medication, especially post-transplant. To help him keep track of his meds, Jerry keeps color coordinated pill cases in his car with extra doses of medications in case he ever forgets to take them. He also keeps extra dosages in his backpack, which he carries with him everywhere, for the same reason.
The video wind sprint was made possible through an unrestricted education grant from Genentech to the Boomer Esiason Foundation.