Sexual and Reproductive Health Resources

Looking for practical, up to date information about sexual and reproductive health for women and girls with CF?

Guides from puberty to incontinence to urinary tract infections to contraception and pregnancy address in detail many areas of sexual health and CF. To help you start the conversation,  share them with your CF team, pediatrician or gynecologist. Continue reading Sexual and Reproductive Health Resources

Behaviors, experience and health care utilization in young women with CF

In this issue of the journal, Kazmerski et al. describe the sexual and reproductive health concerns and related healthcare utilization of young women with CF ages 15–24 years at five CF centers compared to that of the general population [[1][2]]. They found that the sexual activity of young women with CF mimics the behaviors of non-CF counterparts; however women with CF have less access to sexual and reproductive health information and services. Continue reading Behaviors, experience and health care utilization in young women with CF

Introduction of New Therapies Affects Pregnancy Rates in Women With CF

The overall rate at which women with cystic fibrosis are becoming pregnant dropped slightly in recent years — coinciding with the introduction of CFTR modulators and the clinical trials that led to their approval as CF therapies — but appears to be rising again to pre-trial levels, a study reports.  Continue reading Introduction of New Therapies Affects Pregnancy Rates in Women With CF

The Cystic Fibrosis Reproductive & Sexual Health Collaborative (CFReSHC)

Women with CF, we need your expertise and opinions!

Become a member of the CF-Patient Task Force to discuss sexual and reproductive health issues that affect women with CF.  As patients with CF live longer, CFReSHC is committed to patient-engaged research through partnerships with people with CF, researchers, and advocates.  Continue reading The Cystic Fibrosis Reproductive & Sexual Health Collaborative (CFReSHC)

We want to hear from you! CF Roundtable article submission deadline soon

CF Roundtable Article submissions are due December 15th.

The Focus Topic for the Winter 2018 issue is “Becoming A Parent With CF”.  If you – our adult readers with CF – have thought about becoming a parent, what decisions and considerations did you make? Are you a parent or do you help raise a nephew, niece or another child relative? Whether you already have children or want to start a family, tell us about your journey to parenthood.

Continue reading We want to hear from you! CF Roundtable article submission deadline soon

Cystic Fibrosis and Infertility

https://www.news-medical.net/health/Cystic-Fibrosis-and-Infertility.aspx

Cystic fibrosis is an illness best known for causing frequent lung infections and chronic breathing problems. However, it affects organs and tissues throughout the body, including the urogenital system. Continue reading Cystic Fibrosis and Infertility

New on CFF.org: Family Planning

NEW ON CFF.ORG: FAMILY PLANNING & PARENTING WITH CF
As people with cystic fibrosis are living longer, healthier lives, many are considering having families of their own.

To help people in the CF community make informed family planning decisions, Continue reading New on CFF.org: Family Planning

Announcing a Patient-Engagement Study for Women with CF about Their Experiences throughout the Reproductive Life-course

Written by Sandy Sufian, 48 year old woman with CF

I have recently had the great pleasure to join a diverse team of esteemed colleagues and researchers to finally explore a topic I have been passionate about for many years: how women with CF experience our reproductive lives Continue reading Announcing a Patient-Engagement Study for Women with CF about Their Experiences throughout the Reproductive Life-course

Cystic Fibrosis included in updated Contraceptive Guide—Guest blog by Laura Mentch

By Laura Mentch

On July 29th the CDC released an updated Medical Eligibility Criteria for Contraceptive (MEC). These recommendations enable health care providers to evaluate the safety of initiating and continuing use of contraceptive methods for Continue reading Cystic Fibrosis included in updated Contraceptive Guide—Guest blog by Laura Mentch

Women with cystic fibrosis may benefit from specialized sexual and reproductive health care and education, UPMC study shows

http://www.medicalnewstoday.com/releases/309962.php

For female cystic fibrosis (CF) patients and providers, individual CF health care specialists have a significant role in helping patients gain access to educational resources that can help them improve sexual and reproductive Continue reading Women with cystic fibrosis may benefit from specialized sexual and reproductive health care and education, UPMC study shows