From Sustaining and Surviving – to Living!

By Andrea Eisenman

Seventeen years ago I was just going through the motions of trying to keep pushing towards each day with a schedule of treatments, eating, napping, lung bleeds and more treatments. Then starting all over again the following day with Continue reading From Sustaining and Surviving – to Living!

BEF Presents Inspirational Documentary, Up For Air, About 60-year-old CF Ambassador

We are proud to support Up For Air, a documentary about BEF ambassador and 60-year-old pole-vaulting coach living with CF, Jerry Cahill.
https://www.youtube.com/watch?v=5FhWPmFHcr0

The film, directed and produced by Artem Agafonov, was shot over a period of Continue reading BEF Presents Inspirational Documentary, Up For Air, About 60-year-old CF Ambassador

BREAKING NEWS: AN ANALYSIS OF THE NEW SOCIAL SECURITY RULES FOR CYSTIC FIBROSIS.

By Beth Sufian, JD

Social Security has issued new rules regarding Social Security benefit medical eligibility criteria for people with CF.  The new rules will go into effect on October 7, 2016.  The following blog post is a summary of the changes and some important things people with CF should know about the changes. A more detailed Continue reading BREAKING NEWS: AN ANALYSIS OF THE NEW SOCIAL SECURITY RULES FOR CYSTIC FIBROSIS.

Financial Support: Individual Counseling Services For the CF Community

CFRI’s CF Quality of Life Program
A Living Legacy of Peter & Kathy Judge

Through the Cystic Fibrosis Quality of Life (CFQoL) program, individual therapy is available to children and adults with CF as Continue reading Financial Support: Individual Counseling Services For the CF Community

ieCrowd announces achievement of major milestone in commercial development of Smart Oxygen device

ieCrowd™ today announced the achievement of an important milestone in the commercial development of the company’s supplemental oxygen delivery device, Smart OxygenTM. The Smart Oxygen device, being developed by ieCrowd’s Continue reading ieCrowd announces achievement of major milestone in commercial development of Smart Oxygen device

Voting Is Now Open! Help Two Students with Cystic Fibrosis Win $22K toward Higher Ed

The AbbVie CF Scholarship was established 22 years ago to honor young adults with cystic fibrosis (CF) as they pursue goals of higher education. Since then, more than 500 students with CF have received more than $2.4 million in educational funding. Continue reading Voting Is Now Open! Help Two Students with Cystic Fibrosis Win $22K toward Higher Ed

Spring is Here! Guest blog by Kathy Russell

Spring has sprung in our necks of the woods. Fruit trees are blooming and the daffodils are in full glory. It is raining one minute and sunny the next. We always say that if you don’t like the weather here, wait five minutes – it’ll change. Continue reading Spring is Here! Guest blog by Kathy Russell

Going down the road feeling bad–Guest Blog by Stephanie Rath

Tuesday day started off like any other day. I woke up, showered, did my treatments, surfed the internet, and got ready for my day. However, the day was most certainly NOT like any other day.  Who was I kidding? It was the day University of Pittsburgh Medical Center (UPMC) would be meeting to decide if they would take me as a candidate for lung transplant.  After being declined by Continue reading Going down the road feeling bad–Guest Blog by Stephanie Rath

Feeling Good!–Guest Blog by Kathy Russell

I feel good. That may not seem like such a big deal to most people, but it is to me. For the past two-and-a-half years I have not been feeling very well. First I had pneumonia in both lungs. Then I had a twist in my small intestines. The pneumonia never quite went away and my Continue reading Feeling Good!–Guest Blog by Kathy Russell

The O2 Olympics

A Guest Blog by Kathy Russell

As the country gears up for the Olympics, I have been thinking of events that we who have supplemental oxygen (O2) could participate in. Do you remember rhythmic gymnastics? That is the event where people twist, turn, jump and dance with a ball or a long piece of fabric. Continue reading The O2 Olympics