In this episode, we talk with Katie O’Grady, a 17-year old senior at North Rockland High School in New York. Katie is an avid runner and is a member of the Red Raider varsity cross country and track teams. She talks about the role sports and exercise have played in managing her CF, but Continue reading CF Podcast #121: Katie O’Grady – Playing High School Sports with CF
Everyone in the cystic fibrosis community knows that it takes power to fight CF. Twin sisters with CF Ana Stenzel and Isa Stenzel Byrnes, and other members of the CF community, show what power can do in the documentary film “The Power Of Two.” Called “compelling” and “poetic” by Continue reading The Power Of Two” Is Coming To TV May 22!
A new drug “helps clear mucus in cystic fibrosis patients”, BBC News has reported. The website says that a study in children and young adults found that the drug, denufosol, helped keep airways moist and clear of mucus. Continue reading New cystic fibrosis drug tested
Everyone in the cystic fibrosis community knows that it takes power to fight CF. Twin sisters with CF (and frequent CF Roundtable contributors) Ana Stenzel and Isa Stenzel Byrnes, and other members of the CF community, show what power can do in the documentary film “The Power Of Continue reading The Power Of Two” Is Coming To TV May 22!
Just one year ago on April 18, 2012, Jerry underwent a double-lung transplant surgery, and was back home interacting with the CF community only fifteen days later. Three months after his transplant, Jerry ran in Boomer’s CF Run to Breathe 10K in Central Park with his surgeon. Jerry’s Continue reading One Year Post Transplant: Where is Jerry Now?
N30 Pharmaceuticals Inc. in Boulder announced Wednesday that it has administered, in a clinical trial, the first dose of a drug designed to treat cystic fibrosis.
The drug, labeled N6022, was administered this week to a patient at National Jewish Health in Denver. Continue reading Cystic-fibrosis drug gets first clinical trial
I’m not great or even very good at meditation, or at least my idea of what should be proper meditation. Turns out that, for me, regardless of whatever is great and proper meditation, sometimes all you need is just enough meditation – a tiny little something to get you through whatever stressful situation may be occurring. Everyone has or should have a way of dealing with Continue reading Meditation – Guest Blog by Jeanie Hanley
BEF CF Ambassador, Jerry Cahill, created the You Cannot Fail program to challenge people to discover their own heroism, embrace the ups and downs of their life’s journey, make a difference by sharing that journey with others, and celebrate the stories that make them unique. Continue reading The Boomer Esiason Foundation is excited to announce the release of Jerry Cahill’s Children’s Book
Vertex Pharmaceuticals (VRTX) announced Tuesday night the design of two phase III studies for its combination therapy to treat the most common form of cystic fibrosis. The studies will each run for six months, so results could be ready as early as the end of 2013 or during first half of 2014.
If the studies are positive, Vertex intends to file for U.S. approval in 2014. Continue reading Vertex Readies Late-Stage Cystic Fibrosis Drug Studies
Promising pre-clinical data in Cystic Fibrosis for ProtAffin AGs PA401 to be presented at ATS, Philadelphia, 17-22 May 2013
ProtAffin AG, a biotechnology company developing a novel class of next-generation biopharmaceuticals for inflammation, respiratory disease and oncology, has announced that a collaboration with a leading European centre for the study of cystic fibrosis has generated Continue reading Pharma And Biotech