• Study to enroll approximately 130 patients with exocrine pancreatic insufficiency
• More than 50 clinical sites around the United States and Europe are expected to participate
• Anthera to host reception at the North American Cystic Fibrosis Conference to discuss the SOLUTION program. Continue reading Anthera Announces Initiation of the SOLUTION Clinical Study of Oral Sollpura(R) (liprotamase) Unit-Matched Therapy of Non-Porcine Origin in People With Cystic Fibrosis
Success with the Feeding Tube
This is the final episode of the Own Your Feeding Tube video podcast series. Here, you will see how the feeding tube has helped me immensely over the past 4 years. I have gained about 30 pounds, and Continue reading Own Your Feeding Tube with Gunnar Esiason: Episode 5
What Can I expect From My New Feeding Tube?
The second episode of the Own Your Feeding Tube video podcast series will show you how I have had to make a few lifestyle changes after I had my feeding tube placed. Continue reading Own Your Feeding Tube with Gunnar Esiason: Episode 2
In the first episode of the Own Your Feeding Tube video podcast series, this “How-To” video will show how I am able to use my feeding tube in different situations. I cover two different types of “feeds,” bolus feeds and nocturnal pump feeds. Bolus feeds are quick and easy and can get me as Continue reading Own Your Feeding Tube with Gunnar Esiason: Episode 1
Meet Gary Reay – a 26 year old who grew up in Ireland with cystic fibrosis.
He plays soccer and boxes – generally trying to get to the gym at least 4 days a week with his friends – and also loves music and DJing. Continue reading CF Podcast 146: CF and the Feeding Tube
Congratulations to our very own CF Ambassador, Jerry Cahill, for reaching such an amazing milestone! The Boomer Esiason Foundation CF Podcast series has been a huge success for the past ten years – providing educational and informative podcasts and videos – and Jerry plans to keep Continue reading Jerry Cahill: Celebrating 10 Years of Cystic Fibrosis Podcasts
In order to hold himself accountable and to motivate himself, Jerry tracks his exercise and nutrition using the Jawbone Up24 wristband and app. It enables him to track his movement, eating habits, weight, and sleep, and provides great educational articles about healthy living. Continue reading Wind Sprint 44: Tracking Exercise and Nutrition
Come one, come all, and submit your favorite family recipes by August 8 to help raise $5,000 for CFRI through CFChef Shares, an exciting new partnership between AbbVie and CFRI to promote awareness of proper nutrition for those living with CF. Continue reading Calling All ‘Foodies!’
Recent research led by Professor CHAN Hsiao Chang, Li Ka Shing Professor of Physiology and Director of the Epithelial Cell Biology Research Centre at The Chinese University of Hong Kong (CUHK), explains why patients with cystic fibrosis often develop diabetes. The study also suggests a potential treatment strategy for cystic fibrosis associated diabetes. The finding has been published in an international leading scientific journal, Nature Communications. Continue reading CUHK Research Explains Why Patients with Cystic Fibrosis Often Develop Diabetes
What are some easy ways to get proteins and fruit into your diet?
Jerry likes using his Magic Bullet to make different types of smoothies because they are a quick, easy, and nutritious way to consume the necessary amount of calories for someone with CF. The Continue reading Jerry Cahill’s Wind Sprint 39: Protein Smoothies