Trying to Reduce Inflammation

By Andrea Eisenman

I am not into fads, especially when it comes to food. I feel my life is complicated enough having cystic fibrosis and a bilateral lung transplant. There is a lot of time spent on taking medications, checking my blood sugars for diabetes and Continue reading Trying to Reduce Inflammation

Cystic Fibrosis Patients Shouldn’t Skip Supplements

http://www.pharmacytimes.com/

Improved diagnosis and treatment has extended cystic fibrosis (CF) patients’ life expectancy into adulthood. Continue reading Cystic Fibrosis Patients Shouldn’t Skip Supplements

OWN IT: Five Years with the G-Tube

This May marks five years since I had my feeding tube placed, or to put it another way, my G-tube has been with my for 1/5 of my life.

It’s a strange thought. For years I rejected the idea of having a feeding tube – Continue reading OWN IT: Five Years with the G-Tube

Raptor Pharmaceutical Launches QUINSAIR™ in Europe

http://www.nasdaq.com/press-release/raptor-pharmaceutical-launches-quinsair-in-europe-20160411-00214

First-in-Class Inhaled Fluoroquinolone Therapy for Cystic Fibrosis Patients
Raptor Pharmaceutical Corp. (Nasdaq:RPTP) today announced its first commercial sale of QUINSAIR™ (levofloxacin inhalation solution) in Continue reading Raptor Pharmaceutical Launches QUINSAIR™ in Europe

AbbVie CF Scholarship Now Accepting Applications from Students with Cystic Fibrosis for 2016-2017 Academic School Year

Scholarship recognizes 40 exceptional students with cystic fibrosis (CF) for academic excellence, creativity, and community service

¾  More than $2.6 million in scholarships awarded over 24 year history of the program

 NORTH CHICAGO, Ill., April 6, 2016 – AbbVie (NYSE:ABBV) today announced that the 2016 AbbVie CF Scholarship, which honors and Continue reading AbbVie CF Scholarship Now Accepting Applications from Students with Cystic Fibrosis for 2016-2017 Academic School Year

ICYMI: Gunnar’s Living with CF Go Pro Series Part 1

Living with CF Go Pro Series
Part One

It seems like I get an email just about every week from a parent telling me that his or her child has just been diagnosed with the cystic fibrosis. The tone of each email is the exact same. There’s some mix of confusion, Continue reading ICYMI: Gunnar’s Living with CF Go Pro Series Part 1

ICYMI: Ask Gunnar

I have been collecting Ask Gunnar questions for a while now, and for some reason, I haven’t done a post. Time to end that trend. It’s interesting to me that so many people have quite a few similar questions when they reach out to me. Here are a few of the most Continue reading ICYMI: Ask Gunnar

Anthera Announces Initiation of the SOLUTION Clinical Study of Oral Sollpura(R) (liprotamase) Unit-Matched Therapy of Non-Porcine Origin in People With Cystic Fibrosis

• Study to enroll approximately 130 patients with exocrine pancreatic insufficiency
• More than 50 clinical sites around the United States and Europe are expected to participate
• Anthera to host reception at the North American Cystic Fibrosis Conference to discuss the SOLUTION program. Continue reading Anthera Announces Initiation of the SOLUTION Clinical Study of Oral Sollpura(R) (liprotamase) Unit-Matched Therapy of Non-Porcine Origin in People With Cystic Fibrosis

Own Your Feeding Tube with Gunnar Esiason: Episode 5

Success with the Feeding Tube

This is the final episode of the Own Your Feeding Tube video podcast series. Here, you will see how the feeding tube has helped me immensely over the past 4 years. I have gained about 30 pounds, and Continue reading Own Your Feeding Tube with Gunnar Esiason: Episode 5

Own Your Feeding Tube with Gunnar Esiason: Episode 2

What Can I expect From My New Feeding Tube?

http://www.gunnaresiason.com/

The second episode of the Own Your Feeding Tube video podcast series will show you how I have had to make a few lifestyle changes after I had my feeding tube placed. Continue reading Own Your Feeding Tube with Gunnar Esiason: Episode 2