Making it Matter Podcast Ep. 11

Making it Matter Podcast Ep. 11 – This Past Week

Julia and I catch up with each other about the last week. I had an encounter with a security guard a concert over my pill case, Julia talks about her New York City Marathon training and then we both give our opinion on my blog post about Continue reading Making it Matter Podcast Ep. 11

5 things I learned from BreatheCon

BreatheCon, held this past weekend, was an online conference for CF patients from around the country to come together to be able to share life experiences, ideas, and give inspiration to each other in battling this disease.
I attended, and it was an incredible experience. Hearing from keynote speakers who have faced such adversity and have come out of it stronger and more motivated than before, was so uplifting to hear. I believe it created a lot of hope and courage for those that still have our toughest challenges to face.

I want to share the top 5 things that I now understand better about life with Cystic Fibrosis: Continue reading 5 things I learned from BreatheCon

6 Tips for Standing Back Up

6 Tips for Standing Back Up After Being Knocked Down — Guest Blog By Emily Kramer-Golinkoff

Originally posted on Emily’s Entourage, on July 27, 2015
http://www.emilysentourage.org/6-tips-for-standing-back-up-after-being-knocked-down/

The other week, I got some disappointing news at the doctor’s. I have to be honest, it caught me off guard and knocked me down. It also got me thinking about life, the punches it can throw, and how to get back up with strength, conviction and authenticity.Here are 6 tips for standing back up after being knocked down:

Continue reading 6 Tips for Standing Back Up

Jerry Cahill, Boomer Esiason Foundation Ambassador, Celebrates 60th Birthday and Demonstrates that People with Cystic Fibrosis Can Live a Normal Life with Exercise and Medical Compliance

As part of his 60th year, Jerry has Activated a “Living List,” and will Complete 60 Events this Year — This is 60:60

New York, June 27, 2016 – The Boomer Esiason Foundation (BEF) today celebrates the 60th birthday of Jerry Cahill, a BEF cystic fibrosis (CF) Ambassador and double lung transplant survivor, who proves that age is truly just a number and that success is possible with a strong commitment to your health. Within the last Continue reading Jerry Cahill, Boomer Esiason Foundation Ambassador, Celebrates 60th Birthday and Demonstrates that People with Cystic Fibrosis Can Live a Normal Life with Exercise and Medical Compliance

Boomer Esiason Foundation’s Cystic Fibrosis Ambassador, Jerry Cahill, to Ride in 3rd Annual Bike to Breathe Event

The West Coast Bike Ride Aims to Raise Awareness for Cystic Fibrosis
and Promote the Importance of Exercise

New York and San Francisco, September 19, 2016 – The Boomer Esiason Foundation (BEF) today announced that its cystic fibrosis (CF) ambassador, Jerry Cahill, and Emily Schaller, a CF patient who started cycling, running and Continue reading Boomer Esiason Foundation’s Cystic Fibrosis Ambassador, Jerry Cahill, to Ride in 3rd Annual Bike to Breathe Event

CF Podcast 161: Sabrina Walker, Cystic Fibrosis Patient and Cancer Survivor

Today, we meet Sabrina Walker who is 30 years old living, breathing, and succeeding with cystic fibrosis in Anchorage, Alaska. Growing up, her parents encouraged her to stay active and play sports – not allowing her to make excuses about why CF would stop her. Sabrina’s mom is the person who sparked her love Continue reading CF Podcast 161: Sabrina Walker, Cystic Fibrosis Patient and Cancer Survivor

Last Chance to Run the 2016 NYC Marathon with Team Boomer

Join the fight against CF today!

SIGN UP FOR THE
NYC MARATHON

By competing for Team Boomer, you will receive:
• An official Under Armour Team Boomer uniform, Team Boomer wristband, and Team Boomer string bag Continue reading Last Chance to Run the 2016 NYC Marathon with Team Boomer

Everything I know about CF, I learned from my dog — Guest blog by Erin Evans

By Erin Evans

Originally posted on CFLF website http://www.cflf.org

Eight years ago my life took a huge turn. I had just graduated from college and was at a place where I wasn’t really sure what I was going to do with the “rest of my life.” It was around this same time that I was getting sick a lot, and the time Continue reading Everything I know about CF, I learned from my dog — Guest blog by Erin Evans

Making it Matter Episode 5 – How We Stay Motivated

In episode 5 of the Making it Matter podcast series, Julia and I discuss our strategies for staying motivated through the good days and bad. I think it’s important to stress for as much as CF may be similar across the entire patient Continue reading Making it Matter Episode 5 – How We Stay Motivated