Jerry Cahill’s CF Podcast 164

CF Podcast 164: CF Spartan, Honoring the Loss of My Brother feat. Chris Love

In this podcast, we meet 26-year-old CFer, Chris Love, who is a videographer, guitarist, and avid Spartan racer living in New Jersey. Diagnosed at birth, Chris always looked up to his brother and best friend, Patrick. From the time they were Continue reading Jerry Cahill’s CF Podcast 164

Perseverance, Resiliency and Erin Andrews

This morning I came across a story on MMQB about unbelievable year Erin Andrews is having.

As many may know, Erin Andrews, NFL on Fox’s lead sideline reporter, had been dealing with a crazed stalker in court. I cannot even imagine the stress that must Continue reading Perseverance, Resiliency and Erin Andrews

CFF announces recipients of first annual impact grants

Cystic Fibrosis Foundation Announces Recipients of First Annual Impact Grants to Programs That Serve People With CF and Their Families

The Cystic Fibrosis Foundation has announced the recipients of its first annual Impact Grants.

The program provides funding to support people with cystic fibrosis who are creating unique projects in their communities that serve people with the disease and their families. Cystic fibrosis is a rare, genetic disease that causes chronic lung infections and premature death.

The 2016 grants award $10,000 each to seven diverse programs across the country — from one that teaches singing as an outlet for creativity and wellness, to others that provide personal fitness and health training to individuals with cystic fibrosis. Recipients were chosen by the CF Adult Advisory Council, an external panel comprised entirely of adults with the cystic fibrosis, in partnership with the CF Foundation.

“People with CF have the greatest insights about how to live with this disease,” said Drucy Borowitz, M.D., vice president of community partnerships at the CF Foundation. “We are honored to support these organizations that harness the power of the CF community to help people with this disease and their families live better lives every day.”

Read the blog here.

The grant award recipients include:
The Cystic Fibrosis Lifestyle Foundation (CFLF), a nonprofit organization that helps people with CF maintain a healthy lifestyle. The CFLF provides assistance to children and adults with CF who demonstrate a financial need and personal desire to improve their physical wellbeing.

The United States Adult CF Association (USACFA), a nonprofit corporation run by adults with CF, offers the community an opportunity to exchange medical and nonmedical information through its quarterly national newsletter, CF Roundtable.

Project CF Spouse is a nonprofit organization dedicated to supporting spouses of people with CF. The grant will be used to grow the 150-person group, expand educational resources and facilitate connections between other spouses as they navigate their own CF journeys.

The sINgSPIRE program, through Breathe Bravely, will provide free, private voice lessons with a qualified voice instructor who will work on strengthening participants’ respiratory systems and improving self-awareness and confidence.

Program NuYou, part of Attain Health, is an online health coaching and personal training program for individuals with CF. Each participant receives time with an integrative health coach and personal trainer, and the program includes weekly check-ins, video conferences and a workout plan that is tailored to individual participant’s needs.

Miles for Cystic Fibrosis supports Project BreatheStrong, which provides grants for children and adults with CF to take part in activities that will improve their mental and physical heath.

Continuing Education for Caregiver/Individuals with CF supports individuals affected by CF through educational workshops that concentrate on various aspects of the disease.

Continue reading CFF announces recipients of first annual impact grants

Strength and Fitness in CF Care with Will Schlucter

CF Podcast 163: Strength and Fitness in CF Care with Will Schlucter

In this podcast we meet Will Schlucter, a 26 year-old CF patient who owns his own gym, Will Power Strength and Conditioning. After years during his youth of taking breaks during athletics, Will decided, as an adult, to push Continue reading Strength and Fitness in CF Care with Will Schlucter

Sign up to Run with Team Boomer Today!

Join the fight against CF today!

SIGN UP TO RUN IN THE 2017 UNITED AIRLINES NYC HALF MARATHON

Apply for your spot by filling out the online application, and then wait to hear from a Team Boomer representative. Continue reading Sign up to Run with Team Boomer Today!

Up For Air is Available for Rent/Purchase

Up For Air, The Inspirational Award-winning Documentary Available for Rent/Purchase

We are excited to announce that the award-winning Up For Air documentary featuring BEF ambassador and 60-year-old pole-vaulting coach living with CF, Jerry Cahill, is now available to rent and purchase on Vimeo. Watch the full movie here:
https://vimeo.com/ondemand/upforair.

About Up For Air
The film, directed and produced by Artem Agafonov, was shot over a period of five years, highlighting the “lead by example” and “you cannot fail” attitude of Jerry Cahill as he overcomes the daily challenges of living with CF. Viewers will understand the importance of Jerry’s role as a coach and mentor to pole-vaulting athletes, as well as the sobering reality of Jerry’s daily medical regimen.

The documentary follows the steady decline of Jerry’s lung function, framing his body as a defective machine and pegging time as his ultimate antagonist. When Jerry’s lung capacity decreases to 19 percent, a double lung transplant becomes imminent.

Up For Air gives viewers a glimpse into Jerry’s journey as he transforms and vaults over the many obstacles of this next chapter of his life.

Learn more about Up For Air here.

Making it Matter Ep. 16

Making it Matter Ep. 16 – Football and Cystic Fibrosis

Making it Matter this week is Matt Mitchell, a freshman in college with cystic fibrosis, who joins the podcast today to talk about his career as a football player. Matt was a stand out player in high school at Joy Christian Continue reading Making it Matter Ep. 16

Registration for the NYC Half Marathon is Open!

RUN NYC WHILE YOU #GETFIT & #FIGHTCF

SIGN UP FOR THE UNITED AIRLINES NYC HALF

By competing for Team Boomer, you will receive:
• An official Under Armour Team Boomer uniform, Team Boomer Continue reading Registration for the NYC Half Marathon is Open!

Making it Matter Podcast Ep. 11

Making it Matter Podcast Ep. 11 – This Past Week

Julia and I catch up with each other about the last week. I had an encounter with a security guard a concert over my pill case, Julia talks about her New York City Marathon training and then we both give our opinion on my blog post about Continue reading Making it Matter Podcast Ep. 11