Matter Ep. 23 – How Are You Feeling?

Today’s topic comes from a listener whose boyfriend has cystic fibrosis and she wants Julia and I to discuss the “How are you feeling?” question.

“How are you feeling?” That’s a question we with chronic illness hear quite Continue reading Matter Ep. 23 – How Are You Feeling?

Starting College with CF

By Tabitha Caldwell

My name is Tabitha Caldwell, I am eighteen years old and live in Austin, Texas. This fall, I’ll be moving to Utah to start college at Brigham Young University. I’ll be making many changes and experiencing many things for the first time, just like most ingoing college students. Not living with my parents, buying and making all Continue reading Starting College with CF

OWN IT: Audio Podcast Episode 6 – College Roommates Part 2

This podcast will finish the discussion started last week about a person with CF living alongside roommates in college. You will again meet David O’Kane, Carmen Gatta, Vince Love and Matt Flynn, and hear us talk about the support Continue reading OWN IT: Audio Podcast Episode 6 – College Roommates Part 2

Having CF is the Best Thing that Ever Happened to Me

Having CF is difficult.  There is no denying that.  Some days it is hell, other days it is fairly easy given the circumstances.  But with all the bad that has happened, having CF is the best thing that ever happened to me.

Continue reading Having CF is the Best Thing that Ever Happened to Me

Artist with Cystic Fibrosis Loses Sight But Not Vision in CAN’T SEE SH*T Documentary

http://www.broadwayworld.com/bwwtv/article/Artist-with-Cystic-Fibrosis-Loses-Sight-But-Not-Vision-in-CANT-SEE-SHT-Documentary-20160426#

Detroit, MI — “Can’t See Sh*t” is a local film documentary about artist and singer, Brendan Patrick.
Brendan has Cystic Fibrosis which has slowly been deteriorating his physical body- but not his art, integrity or humanity. The Continue reading Artist with Cystic Fibrosis Loses Sight But Not Vision in CAN’T SEE SH*T Documentary

15 Reasons I Never Hide My Cystic Fibrosis––Gunnar Esiason

Cystic fibrosis is a major emotional burden; there is no disputing that. I think sometimes what comes of the emotional stress is a hesitancy for people to really open up about CF. Too often do I talk Continue reading 15 Reasons I Never Hide My Cystic Fibrosis––Gunnar Esiason

CF Podcast 154: Sydney Esiason, on being a CF Sister

“I felt guilty I didn’t have the disease.”

To Sydney Esiason, there is no bigger duty of a sibling than to be the other’s biggest fan and supporter. While Gunnar has been in the spotlight for the majority of his life because of cystic fibrosis, Continue reading CF Podcast 154: Sydney Esiason, on being a CF Sister

Friendships keep Gunnar Esiason Going

Team Boomer’s Athlete of the Month
Every month, Team Boomer, one of our athletic programs at the Boomer Esiason Foundation, chooses an Athlete of the Month. For December, my best friend from growing up, Brian Fleishhacker, Continue reading Friendships keep Gunnar Esiason Going

Friendships keep Gunnar Esiason Going

Team Boomer’s  Athlete of the Month
Every month, Team Boomer, one of our athletic programs at the Boomer Esiason Foundation, chooses an Athlete of the Month. For December, my best friend from growing up, Brian Fleishhacker, was chosen. Brian and his family have played an integral role in Continue reading Friendships keep Gunnar Esiason Going