Sexual and Reproductive Health Resources

Looking for practical, up to date information about sexual and reproductive health for women and girls with CF?

Guides from puberty to incontinence to urinary tract infections to contraception and pregnancy address in detail many areas of sexual health and CF. To help you start the conversation,  share them with your CF team, pediatrician or gynecologist. Continue reading Sexual and Reproductive Health Resources

Introduction of New Therapies Affects Pregnancy Rates in Women With CF

The overall rate at which women with cystic fibrosis are becoming pregnant dropped slightly in recent years — coinciding with the introduction of CFTR modulators and the clinical trials that led to their approval as CF therapies — but appears to be rising again to pre-trial levels, a study reports.  Continue reading Introduction of New Therapies Affects Pregnancy Rates in Women With CF

The Cystic Fibrosis Reproductive & Sexual Health Collaborative (CFReSHC)

Women with CF, we need your expertise and opinions!

Become a member of the CF-Patient Task Force to discuss sexual and reproductive health issues that affect women with CF.  As patients with CF live longer, CFReSHC is committed to patient-engaged research through partnerships with people with CF, researchers, and advocates.  Continue reading The Cystic Fibrosis Reproductive & Sexual Health Collaborative (CFReSHC)

We want to hear from you! CF Roundtable article submission deadline soon

CF Roundtable Article submissions are due December 15th.

The Focus Topic for the Winter 2018 issue is “Becoming A Parent With CF”.  If you – our adult readers with CF – have thought about becoming a parent, what decisions and considerations did you make? Are you a parent or do you help raise a nephew, niece or another child relative? Whether you already have children or want to start a family, tell us about your journey to parenthood.

Continue reading We want to hear from you! CF Roundtable article submission deadline soon

The Cystic Fibrosis Reproductive & Sexual Health Collaborative (CFReSHC) Patient Task Force Meeting is on September 18th!

By Kelly Gilmore

On Monday September 18th from 12:30pm PST- 2:30pm PST we are having a virtual discussion with CF women, and you’re invited! We need your help in understanding what aspects related sexual and Continue reading The Cystic Fibrosis Reproductive & Sexual Health Collaborative (CFReSHC) Patient Task Force Meeting is on September 18th!

CF Podcast 173: Becoming a Parent and Overcoming Infertility with Cystic Fibrosis

In this podcast, we meet Chris Kvam, cystic fibrosis patient, husband, and father. Diagnosed at 4 years old, Chris was told he was infertile, very abruptly, when switching over to his adult cystic fibrosis clinic. Because of the delivery and lack of open conversation about the topic, to this day, he feels that the news was the Continue reading CF Podcast 173: Becoming a Parent and Overcoming Infertility with Cystic Fibrosis

New on CFF.org: Family Planning

NEW ON CFF.ORG: FAMILY PLANNING & PARENTING WITH CF
As people with cystic fibrosis are living longer, healthier lives, many are considering having families of their own.

To help people in the CF community make informed family planning decisions, Continue reading New on CFF.org: Family Planning

Partnering with researchers to discuss women’s health as it relates to having CF

Written by Sandy Sufian, 48 year old woman with CF

I have recently had the great pleasure to join a diverse team of esteemed colleagues and researchers to finally explore a topic I have been passionate about for many years: how women with CF experience our sexual and Continue reading Partnering with researchers to discuss women’s health as it relates to having CF

The Best Laid Plans

A little over a year ago, I did something I really wasn’t sure I would ever be possible for me. As a child with cystic fibrosis, my parents worked hard to give me “normal” life expectations – they encouraged me to talk about my career aspirations, to plan Continue reading The Best Laid Plans

CF Fertility Rates Research ‘Very Personal’ for School of Nursing’s Ladores

For University of Alabama at Birmingham School of Nursing Assistant Professor Sigrid Ladores, Ph.D., investigating reproductive health concerns in adolescents and young adults with chronic illnesses, particularly those with cystic fibrosis, is Continue reading CF Fertility Rates Research ‘Very Personal’ for School of Nursing’s Ladores