We want to hear from you! CF Roundtable article submission deadline soon

CF Roundtable Article submissions are due December 15th.

The Focus Topic for the Winter 2018 issue is “Becoming A Parent With CF”.  If you – our adult readers with CF – have thought about becoming a parent, what decisions and considerations did you make? Are you a parent or do you help raise a nephew, niece or another child relative? Whether you already have children or want to start a family, tell us about your journey to parenthood.

Continue reading We want to hear from you! CF Roundtable article submission deadline soon

The Cystic Fibrosis Reproductive & Sexual Health Collaborative (CFReSHC) Patient Task Force Meeting is on September 18th!

By Kelly Gilmore

On Monday September 18th from 12:30pm PST- 2:30pm PST we are having a virtual discussion with CF women, and you’re invited! We need your help in understanding what aspects related sexual and Continue reading The Cystic Fibrosis Reproductive & Sexual Health Collaborative (CFReSHC) Patient Task Force Meeting is on September 18th!

CF Podcast 173: Becoming a Parent and Overcoming Infertility with Cystic Fibrosis

In this podcast, we meet Chris Kvam, cystic fibrosis patient, husband, and father. Diagnosed at 4 years old, Chris was told he was infertile, very abruptly, when switching over to his adult cystic fibrosis clinic. Because of the delivery and lack of open conversation about the topic, to this day, he feels that the news was the Continue reading CF Podcast 173: Becoming a Parent and Overcoming Infertility with Cystic Fibrosis

New on CFF.org: Family Planning

NEW ON CFF.ORG: FAMILY PLANNING & PARENTING WITH CF
As people with cystic fibrosis are living longer, healthier lives, many are considering having families of their own.

To help people in the CF community make informed family planning decisions, Continue reading New on CFF.org: Family Planning

Partnering with researchers to discuss women’s health as it relates to having CF

Written by Sandy Sufian, 48 year old woman with CF

I have recently had the great pleasure to join a diverse team of esteemed colleagues and researchers to finally explore a topic I have been passionate about for many years: how women with CF experience our sexual and Continue reading Partnering with researchers to discuss women’s health as it relates to having CF

The Best Laid Plans

A little over a year ago, I did something I really wasn’t sure I would ever be possible for me. As a child with cystic fibrosis, my parents worked hard to give me “normal” life expectations – they encouraged me to talk about my career aspirations, to plan Continue reading The Best Laid Plans

CF Fertility Rates Research ‘Very Personal’ for School of Nursing’s Ladores

For University of Alabama at Birmingham School of Nursing Assistant Professor Sigrid Ladores, Ph.D., investigating reproductive health concerns in adolescents and young adults with chronic illnesses, particularly those with cystic fibrosis, is Continue reading CF Fertility Rates Research ‘Very Personal’ for School of Nursing’s Ladores