Reminder from CFChef for Winter Holiday Recipe Contest

We wanted to remind you that there are only two weeks left to submit CF-friendly recipes to the CFChef Winter Holiday recipe contest:

From now until September 14, 2012, we invite you to visit www.Chef4CF.com and enter festive CF-friendly recipes prepared for Thanksgiving, Christmas, Chanukah, and more, for the chance to Continue reading Reminder from CFChef for Winter Holiday Recipe Contest

Jerry Cahill You Cannot Fail Scholarship

Boomer Esiason Foundation Volunteer Jerry Cahill created the You Cannot Fail program to challenge people to discover their own heroism, embrace the ups and downs of their life’s journey, make a difference by sharing that journey with others, and celebrate the stories Continue reading Jerry Cahill You Cannot Fail Scholarship

CFCareForward Scholarship

Recognizing the financial burdens that exist for many cystic fibrosis (CF) families, the
CFCareForward Scholarship was developed to honor young adults with CF as they pursue
goals of higher education and beyond. Through this program, Abbott continues its nearly Continue reading CFCareForward Scholarship

The CFChef Winter Holiday Recipe Contest

Are the hot and humid days of summer getting to you? To cool off, think Christmas in July, as the CFChef program kicks off its Winter Holiday recipe contest.

The CFChef Winter Holiday recipe contest – which starts today, July 20, 2012 – is looking for festive and flavorful cystic fibrosis-friendly recipes for Thanksgiving, Christmas, Chanukah, and more by September 14, 2012.  Continue reading The CFChef Winter Holiday Recipe Contest

Saving Money with Patient Assistance Programs

Many manufacturers of medications used by CF patients offer patient assistance programs to assist individuals with insufficient or no insurance coverage to obtain medications. Programs vary in their offerings from sampling products, providing nutritional supplements, and co-pay assistance. Continue reading Saving Money with Patient Assistance Programs

FDA Safety and Innovation Act Signed: A Monumental Step Toward The Development of Safe and Effective Treatments for Millions of Americans With Rare Diseases

Approval Culminates Years of Advocacy, Education and Relationship-Building Led by NORD

July 9, 2012, Washington DC—-The FDA Safety and Innovation Act, signed by President Obama today, contains the most groundbreaking measures for rare disease patients and their families since the Orphan Drug Act of 1983, the National Organization for Rare Disorders (NORD) said. Continue reading FDA Safety and Innovation Act Signed: A Monumental Step Toward The Development of Safe and Effective Treatments for Millions of Americans With Rare Diseases

Abbott Expands CFChef Program in 2012 for People Affected by Cystic Fibrosis

Abbott today announced the launch of four themed recipe contests as a part of the CFChef program, an online nutrition resource developed to address the specific nutritional needs of people living with cystic fibrosis (CF). The CFChef program will host “Cookout” and “Back-to-School” recipe Continue reading Abbott Expands CFChef Program in 2012 for People Affected by Cystic Fibrosis

New ‘You Cannot Fail’ Scholarship to Support Exceptional Students with CF

The Boomer Esiason Foundation has established the Jerry Cahill You Cannot Fail Scholarship to recognize outstanding students who are living, breathing and succeeding with cystic fibrosis.

BEF Volunteer Jerry Cahill created the You Cannot Fail program to challenge people to discover their own heroism, embrace the ups and downs of their life’s journey, Continue reading New ‘You Cannot Fail’ Scholarship to Support Exceptional Students with CF

CFTR2 – a fabulous new resource on gene mutations is now available for public use!

Collaborators from several institutions around the world and the US Cystic Fibrosis Foundation are excited to announce that a new resource – CFTR2 – is now available for public use!  This is the result of an international research collaboration to provide information about specific Continue reading CFTR2 – a fabulous new resource on gene mutations is now available for public use!