Special Webinar on CF Care

Date: Wednesday, December 12th
Time: 2:00 pm – 3:00pm Eastern time
Title: Providing Best Care for Individuals with Cystic Fibrosis: A Partnership with Patients and Families
Speaker: Dr. Michael Boyle, Director of the Adult CF Center at Johns Hopkins Medicine.

Don’t miss this chance to learn about ways to obtain the best care from your healthcare team.  Dr. Boyle is one of the leading CF adult physicians in the United States and is sure to share some helpful information. Continue reading Special Webinar on CF Care

New Children’s Book by Jerry Cahill

My children’s book is coming out in late January, “Jerry, The Boy Who Could Not Fail”, and you can pre-order ($7.95) by emailing me: jcahill@esiason.org. All book sales go to the Boomer Esiason Foundation for the YOU CANNOT FAIL scholarship for people with cystic fibrosis.

my email is: jerrypv17@aol.com

CFRI CF Discovery Series–After Transplant: Post-Op Care

Presented by 
Gundeep Dhillon, M.D., M.P.H.
Pulmonary and Critical Care, Stanford University

When:  Tuesday, December 11, 2012, 6 PM (PST) / 9 PM (EST)
Who:
For CF patients*, family members and caregivers.  


Why: 
To learn more about post-transplant issues that face those with CF.

 Continue reading CFRI CF Discovery Series–After Transplant: Post-Op Care

Abbott Awards Two Higher Education Scholarships to Inspirational Students Living with Cystic Fibrosis

Abbott, 10/12/2012
Abbott announced the winners of the CFCareForward Thriving Undergraduate and Graduate Scholarship award. Mark Moening, a Virginia Beach, Va. resident, and Wesley McSparin, a native of Paducah, Ky., were unveiled as the 2012 Thriving Undergraduate and Graduate Scholarship recipients, respectively. In celebration of the 20th anniversary of the program, the total award is $20,000.

http://tinyurl.com/8syfx3u

The Sacks for CF Program has returned for the 2012-2013 NFL Season

Thirty Outstanding Students with CF will Receive Sacks for CF Scholarships

The Boomer Esiason Foundation encourages college students who have cystic fibrosis to submit their application for the exciting Sacks for CF Scholarship program. The application deadline is January 11, 2013. Continue reading The Sacks for CF Program has returned for the 2012-2013 NFL Season

Richie’s Spirit Foundation Seeks New Members for Executive Board

Richie’s Spirit Foundation’s mission is to promote organ donation to people of all ages and inspire others to live life with a positive spirit. The Board of Directors ensures the foundation keeps in line with its mission, programming, grants, and helps to further its growth, both civically and fiscally. Continue reading Richie’s Spirit Foundation Seeks New Members for Executive Board

CFChef Winning Back-to-School Recipes

With the school year having just begun, the CFChef program is excited to share the three winning lunchbox creations from the nationwide 2012 CFChef Back-to-School recipe contest. The Fun Taco Boats, Meat Roll-Ups and Spike Milkshake are sure to banish any brown bag boredom at school this year! Continue reading CFChef Winning Back-to-School Recipes

“The Power of Two” Documentary is Available on DVD September 25th

We are pleased to announce that “The Power Of Two” documentary film about life, hope and the miracle of organ donation will be available on DVD starting Sept 25! The DVD not only includes the touching film about living with cystic fibrosis and lung transplantation,  but also many special Continue reading “The Power of Two” Documentary is Available on DVD September 25th

Reminder from CFChef for Winter Holiday Recipe Contest

We wanted to remind you that there are only two weeks left to submit CF-friendly recipes to the CFChef Winter Holiday recipe contest:

From now until September 14, 2012, we invite you to visit www.Chef4CF.com and enter festive CF-friendly recipes prepared for Thanksgiving, Christmas, Chanukah, and more, for the chance to Continue reading Reminder from CFChef for Winter Holiday Recipe Contest