Apply for the BEF Sacks For CF Scholarship Today!

The Sacks for CF Scholarship is related to quarterback sacks made during the NFL season. The undergraduate and graduate award is made annually to 30 people who strive for therapy adherence and academic success. Apply Today! Continue reading Apply for the BEF Sacks For CF Scholarship Today!

MDL Provides New Prenatal Cystic Fibrosis Testing

A novel Cystic Fibrosis testing technology that features next-generation DNA sequencing platforms has been launched by Medical Diagnostic Laboratories, L.L.C. Certified by the Clinical Laboratory Improvement Amendments (CLIA) and accredited by the College of American Pathologists (CAP), MDL specializes in complex, state-of-the-art, automated DNA-based molecular analyses. Continue reading MDL Provides New Prenatal Cystic Fibrosis Testing

Researchers identify potential drug that could help treat cystic fibrosis

From an early age, the lungs of individuals with cystic fibrosis (CF) are colonised and infected by bacteria, a common example being S. aureus. These bacterial infections cause the lungs to become inflamed, infected, and can eventually lead to permanent lung damage. Researchers from the University of Pennsylvania and the Howard Hughes Medical Institute previously showed that an enzyme called Sphingomyelin phosphodiesterase C (SMaseC) produced by the S. aureus bacterium may harm the health of CF patients. Now, they have discovered an inhibitor for this pathogenic bacterial enzyme. Continue reading Researchers identify potential drug that could help treat cystic fibrosis

Novel Cystic Fibrosis Treatment Shows Promise Against Infections

Synedgen, Inc. will present recent study results on the successful application of the company’s novel polymer PAAG for treating Cystic Fibrosis. The data is compiled in two posters entitled “PAAG decreases viscosity and Improves Transportability of Cystic Fibrosis Mucus In Situ” and “Novel Biopolymer Mucolytic PAAG Prevents and Treats Biofilms formed by Cystic Fibrosis Clinical Isolates In Vitro, and Potentiates Tobramycin, Aztreonam, and Vancomycin Activity Against Pseudomonas Aeruginosa and MRSA” which will be presented at the National Cystic Fibrosis Meeting in Atlanta, on October 8-11, 2014. Continue reading Novel Cystic Fibrosis Treatment Shows Promise Against Infections

Is the influenza vaccine safe for cystic fibrosis patients?

Cystic fibrosis (CF) patients are particularly susceptible to complications if they acquire a respiratory infection. The live-attenuated influenza vaccine can significantly reduce the risk of infection; however, the question arose as to whether it was safe for CF patients. Therefore, Canadian researchers conducted a study to evaluate the safety of the vaccine in these individuals. They published their findings online on September 15 in the journal Pediatrics. Continue reading Is the influenza vaccine safe for cystic fibrosis patients?

Nasopharynx in CF Patients May Be Where Bacterial Infections Hide

A new study, entitled, “Pseudomonas aeruginosa adaptation in the nasopharyngeal reservoir leads to migration and persistence in the lungs,” conducted at the University of Liverpool’s Institute of Infection and Global Health, UK, published in Nature Communications, and led by the group of the Professors Aras Kadioglu and Craig Winstanley, show for the first time a new reservoir of infection, the nasopharynx, by Pseudomonas aeruginosa that may explain recurrent infections and the development of chronic lung infection in patients with cystic fibrosis (CF). Continue reading Nasopharynx in CF Patients May Be Where Bacterial Infections Hide

Voting Is Now Open! Help Two Students with Cystic Fibrosis Win $22K toward Higher Ed

The AbbVie CF Scholarship was established 22 years ago to honor young adults with cystic fibrosis (CF) as they pursue goals of higher education. Since then, more than 500 students with CF have received more than $2.4 million in educational funding. Continue reading Voting Is Now Open! Help Two Students with Cystic Fibrosis Win $22K toward Higher Ed

Calling All ‘Foodies!’

Come one, come all, and submit your favorite family recipes by August 8 to help raise $5,000 for CFRI through CFChef Shares, an exciting new partnership between AbbVie and CFRI to promote awareness of proper nutrition for those living with CF. Continue reading Calling All ‘Foodies!’

CUHK Research Explains Why Patients with Cystic Fibrosis Often Develop Diabetes

Recent research led by Professor CHAN Hsiao Chang, Li Ka Shing Professor of Physiology and Director of the Epithelial Cell Biology Research Centre at The Chinese University of Hong Kong (CUHK), explains why patients with cystic fibrosis often develop diabetes. The study also suggests a potential treatment strategy for cystic fibrosis associated diabetes. The finding has been published in an international leading scientific journal, Nature Communications. Continue reading CUHK Research Explains Why Patients with Cystic Fibrosis Often Develop Diabetes

Gunnar Esiason Launches New Blog

Our very own Gunnar Esiason launched a blog to share his story
of living with cystic fibrosis.

“I want to use this blog to share some of my experiences so that hopefully when you, whoever you Continue reading Gunnar Esiason Launches New Blog