Thirty Outstanding Students with CF will Receive Sacks for CF Scholarships!
The Boomer Esiason Foundation encourages college students who have cystic fibrosis to submit their application for the Sacks for CF Scholarship. Continue reading Apply for the Sacks for CF Scholarship Today!
Join us for a Webinar on December 7
Please join us for a free webinar on cystic fibrosis to be held on Saturday, December 7, 2013 from 9:00 am to 1:00 pm MT (8:00 am PT/10:00 am CT/11:00 am ET). This event is being co-sponsored by the American Thoracic Society (ATS), the Cystic Fibrosis Foundation, Children’s Hospital Continue reading National Cystic Fibrosis Education Day Webinar December 7th, 2013
The transition years – adherence and living independently with CF
In the first of two linked live events, Dr Alistair Duff (Consultant Clinical Psychologist at St James’ Hospital, Leeds) chairs an event that will discuss the big challenges of growing up with CF – taking Continue reading Connect, Share, Inform, Unite. Live event: (Sex), Drugs & Rock’n’Roll
The expanding use of genetic testing is having an unforeseen consequence: More people are being told they have genes for potentially fatal diseases but don’t show any symptoms. Continue reading Genetic Testing Leaves More Patients Living in Limbo
At a cost of more than $300,000 a year, the new cystic fibrosis drug, Kalydeco, is one of the most expensive pills in American medicine. In early October, three doctors who treat cystic fibrosis patients said that kind of extremely high pricing for new drugs that treat rare conditions threatens the U.S. health care system and can’t be sustained.
Continue reading Cost of cystic fibrosis drug, others threatens system, doctors say
Last month we moved our daughter Brooke into college. It was quite emotional and very exciting. It was the last stage of a roller-coaster ride of a process, from campus tours to standardized testing to essays and applications. Then there was waiting to Continue reading Guest Blog by Mark Levine–Making the Move: Moving My Daughter into College
CFRI Retreat – 2013 Version
The 2013 version(Party of a Lifetime) of CFRI Retreat was another amazing success! With Jessica Martens and her committee leading the way, the retreat was full of fun, education, exercise, laughter, and tears. CF participants aged in range from 17-56, with two people in their 50s and several now in their 40s and late 30s. YES, we are getting older and wiser! Continue reading 2013 CFRI Retreat Review
Vertex’s strategy in cystic fibrosis (CF) is to provide benefit to as many CF patients as possible, and to maximize the benefit for these patients, with our approved and investigational medicines. Continue reading Vertex Updates Recent Progress and Upcoming Milestones in Clinical Development Programs
A new study led by Dr Gergely Lukacs, from the Physiology Department at McGill University, in Canada, reveals new information about the disease known as cystic fibrosis. Cystic fibrosis (CF), also known as mucoviscidosis, is a life threatening disease that severely affects the digestive system and the lungs. Continue reading Novel Therapy Against Cystic Fibrosis Discovered by Researchers
We hope this note finds you in good health and thriving in all you do. We are pleased to announce that the Boomer Esiason Foundation (BEF) will be partnering with Novartis Pharmaceuticals Corporation to host our first ever live webcast, CFurther: Planning for College and Beyond, on Tuesday, July 30, at 2:00 PM ET/1:00 PM Continue reading CFurther: Planning for College and Beyond