Women with CF, we need your expertise and opinions!
Become a member of the CF-Patient Task Force to discuss sexual and reproductive health issues that affect women with CF. As patients with CF live longer, CFReSHC is committed to patient-engaged research through partnerships with people with CF, researchers, and advocates. Continue reading The Cystic Fibrosis Reproductive & Sexual Health Collaborative (CFReSHC)
Guest Blog By: Brennen Reeves
If I were to count all of the scars on my body, the ones visible to a bystander at the beach, I’d need your fingers and toes, plus mine. And someone to mark the tallies. Thirty-eight. I’ve counted. From my chest, to my stomach, up to my neck, and down to my ankles the grooves are endless it seems. I don’t think I have any on my back but then again I cannot see my back and I still have trouble with sensation from the bilateral lung transplant I received in 2011, so I wouldn’t be able to feel them either. Continue reading Only I Can Look Into My Mirror
“We’ve kind of realized that if we wait it might not happen,” she said.
Caleigh Haber has been dreaming of her wedding day for as long as she can remember, but she never realized it would come like this.
The 27-year-old, who has cystic fibrosis and is currently in need of her second double lung transplant, is about to marry the love of her life, Bryan Takayama. It’s an exciting celebration with a somber undertone.
Continue reading Strangers Help Give Woman in Need of 2nd Double Lung Transplant Her Dream Wedding
Submit your article by September 15th, 2017 to be included in the autumn issue.
CF Roundtable thrives on articles written by our columnists, directors and you! If you would like to share your story or an experience of dealing with life and CF, we would welcome it. Articles can be any length, Continue reading You can write for CF Roundtable!
Today’s topic comes from a listener whose boyfriend has cystic fibrosis and she wants Julia and I to discuss the “How are you feeling?” question.
“How are you feeling?” That’s a question we with chronic illness hear quite Continue reading Matter Ep. 23 – How Are You Feeling?
Making it Matter Ep. 18 – Cystic Fibrosis and Long Term Relationships
Julia and I answer an email from a listener who asks about long term relationships, marriage and kids. Admittedly, neither Julia nor I are even close to that point in our lives, but we do discuss some of the things that are Continue reading Making it Matter Ep. 18
Making it Matter Ep. 15 – Dating with Cystic Fibrosis
Julia and I received an email from a mom whose daughter has CF. She asked how might cystic fibrosis impact her daughter’s dating life as she gets older. Continue reading Making it Matter Ep. 15
Julia and I continue the conversation about infection control and cross infection in cystic fibrosis with our latest podcast. Last week I touched on the topic and gave my thoughts on the CNN story about “The real life ‘Fault in Our Stars’ Couple” in a blog post. It’s a pretty volatile subject, so needless to say my opinion Continue reading Making it Matter Podcast Ep. #8 – Cystic Fibrosis Infection Control
About a year ago CNN brought us the story of Dalton and Katie Prager, two young adults with cystic fibrosis who met on the Internet and went on to get married.
Their story, drawing plenty of similarities from the book and movie The Fault in Continue reading Cystic Fibrosis and “The Fault in Our Stars”
I got a pretty interesting email (not saying that every email I get isn’t interesting!!) from Nicole, 28 with CF, the other day. It was somewhat of a response to my last Ask Gunnar blog, and specifically the Continue reading Scientifically not Scientific–Blog by Gunnar Esiason