Dear Friends of CF Roundtable and the US Adult CF Assn (USACFA),
If you love our work then tell the world! You have an opportunity to help us make even more of a difference in our community. GreatNonprofits-a review site like TripAdvisor-is honoring highly reviewed nonprofits with their 2016 Top-Rated Awards. Won’t you help us raise visibility for our work by posting a Continue reading Help us get our badge for GreatNonprofits: write a review!
The United States Adult Cystic Fibrosis Association (USACFA) is excited to announce our first-ever Lauren Melissa Kelly Scholarship award. The scholarship will be awarded to two adults with cystic fibrosis who are pursuing bachelors or Continue reading US Adult CF Association Scholarship
Well, the New Year is here, and while you’d probably expect me to look forward, I’m going to throw a curveball here and reflect on the past year. Personally, there were a lot of ups and downs Continue reading Gunnar Esiason: Year in Review
New Year! New You!
#GetFit and #CureCF with Team Boomer.
Team Boomer can help you fulfill your New Year’s resolutions. Sign up for one of our featured athletic events today! Continue reading New Year, New You! From Boomer Esiason Foundation
The US Adult CF Association held its Award Ceremony to present the organization’s 2015 Jacoby Angel Award and 2015 Founders Award. The ceremony was held in Phoenix, Arizona on October 9, 2015 during the North American CF Conference and had 102 in attendance. Watch the award Continue reading Award Ceremony Honors Many
Show your support and create awareness by buying this colorfully illustrated organ donation t-shirt to support BEF’s Lung Transplant Grant Program.
All the proceeds received from the lung shirt will benefit the Boomer Esiason Foundation’s Lung Transplant Grant Program for people with CF. Our goal is, and always will, be to raise enough funds and awareness to cure CF.
The legislation, which makes the Improving Access to Clinical Trials Act (IACT) of 2009 permanent, was introduced in the Senate by Senators Ron Wyden (D-Ore.), Orrin Hatch (R-UT), Sherrod Brown (D-OH) and Edward Markey (D-Mass.) and in Continue reading CF Foundation–Championed Bill Passes Senate, then House
The Ensuring Access to Clinical Trials Act (EACT) makes permanent a law that will expire on OCTOBER 5th if we do not take action now. EACT will permanently allow people with rare diseases, like CF, to participate in clinical trials without the risk of losing Supplemental Security Income and Medicaid benefits. Continue reading CALL TO ACTION – The Ensuring Access to Clinical Trials Act (EACT)