What do Gunnar Esiason and Miss Philadelphia have in common?

All right, it’s back, the first episode of the Own It Audio Podcast of the New Year and the fourth overall. My goal is to really expand my podcast this year and showcase people with CF or stories about people with CF who really go Continue reading What do Gunnar Esiason and Miss Philadelphia have in common?

Don’t Call Me That – Language is Power. Guest blog by Chris Kvam, Esq.

Five things we need to stop calling ourselves and why.

You know what the labels are: Patient. CFer. Cystic. Fibro/Cyster. Sufferer. It makes me cringe just to write them! I strongly dislike these words, and believe that our community would be better off if they were never said again. I see Continue reading Don’t Call Me That – Language is Power. Guest blog by Chris Kvam, Esq.

Gunnar Esiason: Genetic Discrimination

I typically don’t post twice in the same week, but I felt a burning desire to say something about this.

This story comes from the blog “IFL Science” or Continue reading Gunnar Esiason: Genetic Discrimination

Help us get our badge for GreatNonprofits: write a review!

Dear Friends of CF Roundtable and the US Adult CF Assn (USACFA),

If you love our work then tell the world! You have an opportunity to help us make even more of a difference in our community. GreatNonprofits-a review site like TripAdvisor-is honoring highly reviewed nonprofits with their 2016 Top-Rated Awards. Won’t you help us raise visibility for our work by posting a Continue reading Help us get our badge for GreatNonprofits: write a review!

US Adult CF Association Scholarship

The United States Adult Cystic Fibrosis Association (USACFA) is excited to announce our first-ever Lauren Melissa Kelly Scholarship award. The scholarship will be awarded to two adults with cystic fibrosis who are pursuing bachelors or Continue reading US Adult CF Association Scholarship

Gunnar Esiason: Year in Review

Well, the New Year is here, and while you’d probably expect me to look forward, I’m going to throw a curveball here and reflect on the past year. Personally, there were a lot of ups and downs Continue reading Gunnar Esiason: Year in Review

Award Ceremony Honors Many

The US Adult CF Association held its Award Ceremony to present the organization’s 2015 Jacoby Angel Award and 2015 Founders Award.  The ceremony was held in Phoenix, Arizona on October 9, 2015 during the North American CF Conference and had 102 in attendance.  Watch the award Continue reading Award Ceremony Honors Many

Help Boomer Esiason Foundation raise money for people with CF who have a lung transplant

Show your support and create awareness by buying this colorfully illustrated organ donation t-shirt to support BEF’sLung-Shirt-blog Lung Transplant Grant Program.

All the proceeds received from the lung shirt will benefit the Boomer Esiason Foundation’s Lung Transplant Grant Program for people with CF.  Our goal is, and always will, be to raise enough funds and awareness to cure CF.

http://store.youcannotfail.com/products/organ-donation-t-shirt/