Cystic fibrosis is a major emotional burden; there is no disputing that. I think sometimes what comes of the emotional stress is a hesitancy for people to really open up about CF. Too often do I talk Continue reading 15 Reasons I Never Hide My Cystic Fibrosis––Gunnar Esiason
Help us #CureCF!
Sign up to run for Team Boomer in the
2016 Bank of America Chicago Marathon
Sunday, October 9, 2016 Continue reading Run the Chicago Marathon for Team Boomer this year!
All right, it’s back, the first episode of the Own It Audio Podcast of the New Year and the fourth overall. My goal is to really expand my podcast this year and showcase people with CF or stories about people with CF who really go Continue reading What do Gunnar Esiason and Miss Philadelphia have in common?
Five things we need to stop calling ourselves and why.
You know what the labels are: Patient. CFer. Cystic. Fibro/Cyster. Sufferer. It makes me cringe just to write them! I strongly dislike these words, and believe that our community would be better off if they were never said again. I see Continue reading Don’t Call Me That – Language is Power. Guest blog by Chris Kvam, Esq.
I typically don’t post twice in the same week, but I felt a burning desire to say something about this.
This story comes from the blog “IFL Science” or Continue reading Gunnar Esiason: Genetic Discrimination
Dear Friends of CF Roundtable and the US Adult CF Assn (USACFA),
If you love our work then tell the world! You have an opportunity to help us make even more of a difference in our community. GreatNonprofits-a review site like TripAdvisor-is honoring highly reviewed nonprofits with their 2016 Top-Rated Awards. Won’t you help us raise visibility for our work by posting a Continue reading Help us get our badge for GreatNonprofits: write a review!
The United States Adult Cystic Fibrosis Association (USACFA) is excited to announce our first-ever Lauren Melissa Kelly Scholarship award. The scholarship will be awarded to two adults with cystic fibrosis who are pursuing bachelors or Continue reading US Adult CF Association Scholarship
Well, the New Year is here, and while you’d probably expect me to look forward, I’m going to throw a curveball here and reflect on the past year. Personally, there were a lot of ups and downs Continue reading Gunnar Esiason: Year in Review
New Year! New You!
#GetFit and #CureCF with Team Boomer.
Team Boomer can help you fulfill your New Year’s resolutions. Sign up for one of our featured athletic events today! Continue reading New Year, New You! From Boomer Esiason Foundation
The US Adult CF Association held its Award Ceremony to present the organization’s 2015 Jacoby Angel Award and 2015 Founders Award. The ceremony was held in Phoenix, Arizona on October 9, 2015 during the North American CF Conference and had 102 in attendance. Watch the award Continue reading Award Ceremony Honors Many