Only I Can Look Into My Mirror

Guest Blog By: Brennen Reeves

If I were to count all of the scars on my body, the ones visible to a bystander at the beach, I’d need your fingers and toes, plus mine. And someone to mark the tallies. Thirty-eight. I’ve counted. From my chest, to my stomach, up to my neck, and down to my ankles the grooves are endless it seems. I don’t think I have any on my back but then again I cannot see my back and I still have trouble with sensation from the bilateral lung transplant I received in 2011, so I wouldn’t be able to feel them either. Continue reading Only I Can Look Into My Mirror

Strength and Fitness in CF Care with Will Schlucter

CF Podcast 163: Strength and Fitness in CF Care with Will Schlucter

In this podcast we meet Will Schlucter, a 26 year-old CF patient who owns his own gym, Will Power Strength and Conditioning. After years during his youth of taking breaks during athletics, Will decided, as an adult, to push Continue reading Strength and Fitness in CF Care with Will Schlucter

Partnering with researchers to discuss women’s health as it relates to having CF

Written by Sandy Sufian, 48 year old woman with CF

I have recently had the great pleasure to join a diverse team of esteemed colleagues and researchers to finally explore a topic I have been passionate about for many years: how women with CF experience our sexual and Continue reading Partnering with researchers to discuss women’s health as it relates to having CF

Own It Audio Podcast Ep. 9

Own It Audio Podcast Ep. 9 – Feeling Great When You’re Sick

LISTEN HERE

In this episode of the Own It Audio Podcast, you will meet Kate Arian. She’s 27 with cystic fibrosis, and just about to celebrate the 5 year anniversary of her Continue reading Own It Audio Podcast Ep. 9

OWN IT: Bulking Up – A Few Recipes That I Use

I received a bunch of awesome responses to my Vitamix blog, with most asking about what I actually put into the Vitamix.

So, I’d like to share a few recipes with everyone.

Now remember, I am a cystic fibrosis patient with a feeding tube, so here are Continue reading OWN IT: Bulking Up – A Few Recipes That I Use

Body Image Issues

Like many women, I have body image issues.  My legs aren’t shapely enough, my stomach isn’t flat enough, my hips aren’t large enough, etc.  And because of CF I add in the bloated belly, skinny arms and legs, and the barrel chest and I am a hodge-podge of awkwardness.  Like many women I struggle with my weight Continue reading Body Image Issues