Live Stream the North American CF Conference Tomorrow for Free!

The North American CF Conference (NACFC) provides a collaborative and educational forum for all CF professionals. The educational elements of the meeting program are targeted to physicians, nurses, research scientists, respiratory therapists, physical therapists, nutritionists, social workers, and pharmacists. Continue reading Live Stream the North American CF Conference Tomorrow for Free!

Sign up for BreatheCON Sept 8th and 9th!

By Jeanie Hanley MD, President of USACFA and
John Mercer, BreatheCon 2017 Co-Chair

Sign up today for this FREE virtual event for adults with cystic fibrosis.

Our USACFA director, Mark Levine, is a featured Keynote Speaker on Friday and our CF Roundtable columnists, Aimee Continue reading Sign up for BreatheCON Sept 8th and 9th!

You are invited to attend a free web-cast event SATURDAY, APRIL 22, 2017

RARE LUNG DISEASES PATIENT EDUCATION DAY ON CYSTIC FIBROSIS, CHILDREN’S INTERSTITIAL LUNG DISEASE AND PRIMARY CILIARY DYSKINESIA

REGISTER NOW AT:
https://attendee.gotowebinar.com/register/6993341835513746691

This event is co-sponsored by the American Thoracic Society, the Cystic Fibrosis Foundation, the Children’s Interstitial Lung Disease Foundation and the Primary Continue reading You are invited to attend a free web-cast event SATURDAY, APRIL 22, 2017

Making it Matter Podcast Ep. 9 – Flu Season

Flu season is just about here so Julia and I talk about the important fine line between being prepared and making sure we don’t find ourselves living in a bubble. We also discuss our incredibly different experiences with the flu shot (I really have no excuse for being totally terrified of it), and how we (very Continue reading Making it Matter Podcast Ep. 9 – Flu Season

5 things I learned from BreatheCon

BreatheCon, held this past weekend, was an online conference for CF patients from around the country to come together to be able to share life experiences, ideas, and give inspiration to each other in battling this disease.
I attended, and it was an incredible experience. Hearing from keynote speakers who have faced such adversity and have come out of it stronger and more motivated than before, was so uplifting to hear. I believe it created a lot of hope and courage for those that still have our toughest challenges to face.

I want to share the top 5 things that I now understand better about life with Cystic Fibrosis: Continue reading 5 things I learned from BreatheCon

Making it Matter Podcast Ep. #8 – Cystic Fibrosis Infection Control

Julia and I continue the conversation about infection control and cross infection in cystic fibrosis with our latest podcast. Last week I touched on the topic and gave my thoughts on the CNN story about “The real life ‘Fault in Our Stars’ Couple” in a blog post. It’s a pretty volatile subject, so needless to say my opinion Continue reading Making it Matter Podcast Ep. #8 – Cystic Fibrosis Infection Control

Important Message from the CDC

The Centers for Disease Control and Prevention is collaborating with the Food and Drug Administration, multiple state and local health departments, and numerous health care facilities to investigate a multi-state outbreak of Burkholderia cepacia infections. These infections have occurred primarily in Continue reading Important Message from the CDC

Celebrating 4 Years Post Transplant with Jerry Cahill

Gunnar Esiason sat down with BEF CF Ambassador Jerry Cahill recently to find out more about his double lung transplant and the way his life has changed since he had the procedure 4 years ago. Jerry shares the many ways in which he has traded certain CF issues for complications that come Continue reading Celebrating 4 Years Post Transplant with Jerry Cahill

CF Wind Sprint 55: Using a Medical Mask

Sheila reached out to Jerry asking what type of mask he wears while traveling or visiting the doctor.

He uses the 3M Particulate Respirator N95 Mask – style number 9210/37021 for protection from germs. These masks can be purchased online and come Continue reading CF Wind Sprint 55: Using a Medical Mask

Gunnar Esiason: Genetic Discrimination

I typically don’t post twice in the same week, but I felt a burning desire to say something about this.

This story comes from the blog “IFL Science” or Continue reading Gunnar Esiason: Genetic Discrimination