You are invited to attend a free web-cast event SATURDAY, APRIL 22, 2017

RARE LUNG DISEASES PATIENT EDUCATION DAY ON CYSTIC FIBROSIS, CHILDREN’S INTERSTITIAL LUNG DISEASE AND PRIMARY CILIARY DYSKINESIA

REGISTER NOW AT:
https://attendee.gotowebinar.com/register/6993341835513746691

This event is co-sponsored by the American Thoracic Society, the Cystic Fibrosis Foundation, the Children’s Interstitial Lung Disease Foundation and the Primary Continue reading You are invited to attend a free web-cast event SATURDAY, APRIL 22, 2017

AbbVie Celebrates 25th Year of its CF Scholarship and is Now Accepting Applications from Students with Cystic Fibrosis

– Scholarship recognizes 40 exceptional students with cystic fibrosis (CF) for academic excellence, creativity and community service
– In honor of the program’s 25th anniversary, AbbVie is introducing a new award category — the Blogger’s Choice Award, for an additional scholarship opportunity Continue reading AbbVie Celebrates 25th Year of its CF Scholarship and is Now Accepting Applications from Students with Cystic Fibrosis

CFF announces recipients of first annual impact grants

Cystic Fibrosis Foundation Announces Recipients of First Annual Impact Grants to Programs That Serve People With CF and Their Families

The Cystic Fibrosis Foundation has announced the recipients of its first annual Impact Grants.

The program provides funding to support people with cystic fibrosis who are creating unique projects in their communities that serve people with the disease and their families. Cystic fibrosis is a rare, genetic disease that causes chronic lung infections and premature death.

The 2016 grants award $10,000 each to seven diverse programs across the country — from one that teaches singing as an outlet for creativity and wellness, to others that provide personal fitness and health training to individuals with cystic fibrosis. Recipients were chosen by the CF Adult Advisory Council, an external panel comprised entirely of adults with the cystic fibrosis, in partnership with the CF Foundation.

“People with CF have the greatest insights about how to live with this disease,” said Drucy Borowitz, M.D., vice president of community partnerships at the CF Foundation. “We are honored to support these organizations that harness the power of the CF community to help people with this disease and their families live better lives every day.”

Read the blog here.

The grant award recipients include:
The Cystic Fibrosis Lifestyle Foundation (CFLF), a nonprofit organization that helps people with CF maintain a healthy lifestyle. The CFLF provides assistance to children and adults with CF who demonstrate a financial need and personal desire to improve their physical wellbeing.

The United States Adult CF Association (USACFA), a nonprofit corporation run by adults with CF, offers the community an opportunity to exchange medical and nonmedical information through its quarterly national newsletter, CF Roundtable.

Project CF Spouse is a nonprofit organization dedicated to supporting spouses of people with CF. The grant will be used to grow the 150-person group, expand educational resources and facilitate connections between other spouses as they navigate their own CF journeys.

The sINgSPIRE program, through Breathe Bravely, will provide free, private voice lessons with a qualified voice instructor who will work on strengthening participants’ respiratory systems and improving self-awareness and confidence.

Program NuYou, part of Attain Health, is an online health coaching and personal training program for individuals with CF. Each participant receives time with an integrative health coach and personal trainer, and the program includes weekly check-ins, video conferences and a workout plan that is tailored to individual participant’s needs.

Miles for Cystic Fibrosis supports Project BreatheStrong, which provides grants for children and adults with CF to take part in activities that will improve their mental and physical heath.

Continuing Education for Caregiver/Individuals with CF supports individuals affected by CF through educational workshops that concentrate on various aspects of the disease.

Continue reading CFF announces recipients of first annual impact grants

Introduction: Miracle Flights: free medically-related air travel for ill patients, including CF

Miracle Flights recently reached out to tell us about their wonderful organization and explain the details of their service, which we have compiled into a blog article to share on our website with our CF community. Continue reading Introduction: Miracle Flights: free medically-related air travel for ill patients, including CF

USACFA Scholarship Due November 30, 2016 for Spring 2017!

The United States Adult Cystic Fibrosis Association (USACFA) is excited to offer the Lauren Melissa Kelly Scholarship award for the Spring semester 2017. The scholarship will range from $1500 to $2500 and be awarded to adults with cystic fibrosis who are pursuing career certifications, Continue reading USACFA Scholarship Due November 30, 2016 for Spring 2017!

USACFA Scholarship To Include Those Pursuing Certification Degrees!

USACFA Scholarship To Include Those Pursuing Certification Degrees! Due November 30, 2016 for Spring 2017!

The United States Adult Cystic Fibrosis Association (USACFA) is excited to offer the Lauren Melissa Kelly Scholarship award for the Spring semester 2017. The scholarship will range from $1500 to $2500 and be awarded to Continue reading USACFA Scholarship To Include Those Pursuing Certification Degrees!

US Adult CF Association Scholarship Application Due November 30, 2016 for Spring 2017

The United States Adult Cystic Fibrosis Association (USACFA) is excited to offer the Lauren Melissa Kelly Scholarship award for the Spring semester 2017. The scholarship will range from $1500 to $2500 and be awarded to adults with cystic fibrosis who are pursuing associate’s or bachelor’s degrees. Read on to learn Continue reading US Adult CF Association Scholarship Application Due November 30, 2016 for Spring 2017

FREE, Limited-Time Support Tool for People With CF

CareForCF.com is a FREE limited-time support tool that can help patients navigate common CF challenges. This text-message program is designed for “on-the-go” individuals and is personalized to fit their needs. The tool delivers quick, helpful tips on improving communication with CF care teams, following Continue reading FREE, Limited-Time Support Tool for People With CF

AbbVie CF Scholarship Now Accepting Applications from Students with Cystic Fibrosis for 2016-2017 Academic School Year

Scholarship recognizes 40 exceptional students with cystic fibrosis (CF) for academic excellence, creativity, and community service

¾  More than $2.6 million in scholarships awarded over 24 year history of the program

 NORTH CHICAGO, Ill., April 6, 2016 – AbbVie (NYSE:ABBV) today announced that the 2016 AbbVie CF Scholarship, which honors and Continue reading AbbVie CF Scholarship Now Accepting Applications from Students with Cystic Fibrosis for 2016-2017 Academic School Year

Apply for the Exercise for Life Scholarship Today!

Exercise for Life Scholarship
Application Deadline: June 10, 2016
You must start logging your exercise routine on March 13th to be eligible.

Download the log here.
Doctors and CF centers have made it clear: when it comes to CF, exercise Continue reading Apply for the Exercise for Life Scholarship Today!