Strangers Help Give Woman in Need of 2nd Double Lung Transplant Her Dream Wedding

“We’ve kind of realized that if we wait it might not happen,” she said.

Caleigh Haber has been dreaming of her wedding day for as long as she can remember, but she never realized it would come like this.

The 27-year-old, who has cystic fibrosis and is currently in need of her second double lung transplant, is about to marry the love of her life, Bryan Takayama. It’s an exciting celebration with a somber undertone.

Continue reading Strangers Help Give Woman in Need of 2nd Double Lung Transplant Her Dream Wedding

CF Relief Fund Launched for Those with CF Impacted by Hurricanes.

Isabella Passamano, daughter of Beth Sufian and James Passamano, has launched the CF Relief Fund to provide direct relief to children and adults with CF affected by Hurricanes Harvey and Irma. Continue reading CF Relief Fund Launched for Those with CF Impacted by Hurricanes.

New health bill replaces hope with fear in cystic fibrosis patients

http://thehill.com/blogs/pundits-blog/healthcare/340084-new-health-bill-replaces-hope-with-fear-in-cystic-fibrosis

Letter from Preston W. Campbell, III, M.D.

As the Senate considers its proposal for healthcare reform, I urge lawmakers not to forget the millions of people who will rely on this legislation for lifesaving medicines and care. There is much more at stake with the Better Continue reading New health bill replaces hope with fear in cystic fibrosis patients

Asking For Help–Guest Blog

By Stephanie Rath

My father committed suicide when I was four. Being an only child it was just my mom and I. Thankfully we had help. We moved from North Carolina and into the basement of my grandparents. Being a single mom my mother needed help back Continue reading Asking For Help–Guest Blog