New health bill replaces hope with fear in cystic fibrosis patients

http://thehill.com/blogs/pundits-blog/healthcare/340084-new-health-bill-replaces-hope-with-fear-in-cystic-fibrosis

Letter from Preston W. Campbell, III, M.D.

As the Senate considers its proposal for healthcare reform, I urge lawmakers not to forget the millions of people who will rely on this legislation for lifesaving medicines and care. There is much more at stake with the Better Continue reading New health bill replaces hope with fear in cystic fibrosis patients

This is how Trumpcare will be a death sentence

Originally published 6/28 on Think Progress by Ian Millhiser
https://thinkprogress.org/jonathan-trumpcare-b02947f9a9c5

Originally publishedStripping health care from millions of people has consequences.

Jonathan Miller with his mother and sister. CREDIT: Courtesy of Jonathan Miller

Continue reading This is how Trumpcare will be a death sentence

You are invited to attend a free web-cast event SATURDAY, APRIL 22, 2017

RARE LUNG DISEASES PATIENT EDUCATION DAY ON CYSTIC FIBROSIS, CHILDREN’S INTERSTITIAL LUNG DISEASE AND PRIMARY CILIARY DYSKINESIA

REGISTER NOW AT:
https://attendee.gotowebinar.com/register/6993341835513746691

This event is co-sponsored by the American Thoracic Society, the Cystic Fibrosis Foundation, the Children’s Interstitial Lung Disease Foundation and the Primary Continue reading You are invited to attend a free web-cast event SATURDAY, APRIL 22, 2017

Tell Congress to Oppose the American Health Care Act

The House of Representatives will soon vote on legislation that would jeopardize access to affordable and adequate health care coverage for people with cystic fibrosis.

The bills would effectively eliminate Medicaid expansion and alter Medicaid’s funding structure in a way that would reduce access to care Continue reading Tell Congress to Oppose the American Health Care Act

Urgent call to action for future healthcare

From Sue Landgraf, Exectuive Director of CFRI

Urgent Call to Action! Congress is beginning to discuss proposals for future healthcare legislation. Proposals thus far do not include many of the protections that are contained within the Affordable Care Act (ACA), which would be catastrophic for many members of the cystic fibrosis Continue reading Urgent call to action for future healthcare

CALL TO ACTION – The Affordable Care Act

From the CFF…
We are sending this out today to let you know about an urgent need for action.  Wednesday, the Senate took a significant step toward repealing the Affordable Care Act. As critical health care reform decisions are made, it is essential that Continue reading CALL TO ACTION – The Affordable Care Act