Thanks to The Boomer Esiason Foundation, CF Roundtable’s new Pearl Sustaining Partner

We would like to thank The Boomer Esiason Foundation for its continued support at the Pearl Sustaining Partner level. A special thank you goes out to BEF volunteer Jerry Cahill for helping make this grant possible. Because of this support, we can provide all of our CF Roundtable programs such as:

The Boomer Esiason Foundation helps support the CF community via its programs including:

  • Scholarships – BEF has numerous scholarship opportunities available
  • Lung Transplant Grant Program – covers transportation, housing and other expenses not covered by insurance that are related to transplant
  • You Cannot Fail – A motivation program that empowers people with CF
  • CF Podcasts – podcasts covering a wide variety of CF-related topics produced by Jerry Cahill
  • CF Wind Sprints – short videos by BEF Volunteer Jerry Cahill with tips for living with CF
  • Gunnar’s Blog – a personal blog of Gunnar Esiason, Boomer’s son, who has CF
  • Hospital Bags – goodie bags provided to CF patients of all ages during hospital stays
  • Team Boomer – encourages people with CF to be active by participating in events and helping to fundraise
  • Bike 2 Breathe – An annual 500-bike tour to raise awareness for the importance of exercise with CF
  • CF Century Rides – A personal goal of Jerry Cahill’s. Jerry is determined to do a century ride (100 miles bike ride) in all 50 states for CF!
  • CF: Live By Example – A pilot program where people with CF who are living, breathing, and succeeding will ensure parents of newly diagnosed children that CF is only a bump in the road, not a death sentence.
  • Club CF – an online forum where people with CF can share their stories

For more information on The Boomer Esiason Foundation please visit: https://www.esiason.org/

PMD Healthcare Announces Two New Patient Advisory Boards

PMD Healthcare, a medical device, digital health and chronic care management services company, has announced it is forming two new patient advisory boards: one for Cystic Fibrosis (CF) patients and caregivers of CF Children, and one for Pulmonary Fibrosis (PF) patients and PF caregivers.

Continue reading PMD Healthcare Announces Two New Patient Advisory Boards

USACFA Annouced by CF Foundation as a Recipient of 2017 Impact Grant

The Cystic Fibrosis Foundation has announced the recipients of its second annual Impact Grants. The Impact Grants Program provides funding to unique projects by and for people with cystic fibrosis (CF) and their family members. CF is a rare, genetic disease that progressively limits the ability to breathe and ultimately causes premature death.

Continue reading USACFA Annouced by CF Foundation as a Recipient of 2017 Impact Grant

AbbVie Announces 25th Annual Cystic Fibrosis Scholarship Program Including 2017 Thriving Student Scholarship Contest and Blogger’s Choice Award

• In honor of the program’s 25th anniversary, AbbVie is awarding three $25,000 scholarships, including a new award category – the Blogger’s Choice Award
• Cast a vote online or via text message, through October 13, 2017, to help determine this year’s Thriving Undergraduate and Continue reading AbbVie Announces 25th Annual Cystic Fibrosis Scholarship Program Including 2017 Thriving Student Scholarship Contest and Blogger’s Choice Award

Boomer Esiason Wants You… to Run the TCS NYC Marathon!

NOVEMBER 5, 2017
STEP 1: REGISTER
To run for Team Boomer

STEP 2: INTERVIEW
with Team Boomer staffer Katie

STEP 3: RUN NEW YORK CITY! Continue reading Boomer Esiason Wants You… to Run the TCS NYC Marathon!

The Cystic Fibrosis Reproductive & Sexual Health Collaborative (CFReSHC) Patient Task Force Meeting is on September 18th!

By Kelly Gilmore

On Monday September 18th from 12:30pm PST- 2:30pm PST we are having a virtual discussion with CF women, and you’re invited! We need your help in understanding what aspects related sexual and Continue reading The Cystic Fibrosis Reproductive & Sexual Health Collaborative (CFReSHC) Patient Task Force Meeting is on September 18th!

Team Boomer Asks, Are You In?

Run with Team Boomer in the TCS New York City Marathon

NOVEMBER 5, 2017
STEP 1: REGISTER
To run for Team Boomer

STEP 2: INTERVIEW
with Team Boomer staffer Katie

STEP 3: RUN NEW YORK CITY! Continue reading Team Boomer Asks, Are You In?

New health bill replaces hope with fear in cystic fibrosis patients

http://thehill.com/blogs/pundits-blog/healthcare/340084-new-health-bill-replaces-hope-with-fear-in-cystic-fibrosis

Letter from Preston W. Campbell, III, M.D.

As the Senate considers its proposal for healthcare reform, I urge lawmakers not to forget the millions of people who will rely on this legislation for lifesaving medicines and care. There is much more at stake with the Better Continue reading New health bill replaces hope with fear in cystic fibrosis patients

This is how Trumpcare will be a death sentence

Originally published 6/28 on Think Progress by Ian Millhiser
https://thinkprogress.org/jonathan-trumpcare-b02947f9a9c5

Originally publishedStripping health care from millions of people has consequences.

Jonathan Miller with his mother and sister. CREDIT: Courtesy of Jonathan Miller

Continue reading This is how Trumpcare will be a death sentence