People with cystic fibrosis (CF) will be able to access the latest research findings about their condition, volunteer for clinical trials and influence the direction of future scientific studies through a new website being launched later this week.
CFUnite.org is the brainchild of academics at The University of Nottingham who wanted to find a way of bringing patients together to discuss scientific and medical breakthroughs without risking Continue reading New website to unite cystic fibrosis patients and researchers
In Jerry’s latest video podcast, we meet Lynne Sampson, Executive Director and CEO of HelpHOPELive, a non profit organization that assists transplant patients as well as catastrophic injury patients. She explains what her organization does and how it can positively affects those in the CF Community.
To learn more about HelpHOPELive, go to: http://www.youtube.com/watch?v=jr5q0A2MzvE
Here is a link to an interesting article on improving the number of lungs that could be used for transplant. Helping to eventually save more lives and increase donor lungs available. http://www.philly.com/philly/hp/news_update/185727251.html
It has been a little over 8 years since I received the gift. Without the gift, I might have lived a year, possibly a little longer. It would have been time suffering in hospitals and at home, with little to look forward to, except death. Instead, my gift of a pair of lungs has changed my life. Physically, Continue reading The Gift–Guest Blog By Paul Feld
What would you do if you knew you could not fail? Find out at: www.youcannotfail.com
Your struggle does not define you. Your reaction to that struggle will.
Whether faced with a life-altering disease, decision, or situation, how you react exposes hidden Continue reading You Cannot Fail Website is Live
Gearing up for getting a lung transplant, my bone density had to be evaluated. Since it was a non-invasive test, I was more than happy to comply. It was similar to an x-ray and I got to pretty much lay on a table. My bone density was a shock to the endocrinologist Continue reading Feel it in my bones
Guest blog by Stephanie Devine Rath
Many say the path to transplant is a long and winding road. Right now for me it feels like a roller-coaster. Just after Thanksgiving I was evaluated for a lung transplant at Duke Medical Center. It was a crazy and exhausting week of many tests. The surgeons felt I might be too early for Continue reading The Road to Transplant
Thirty Outstanding Students with CF will Receive Sacks for CF Scholarships
The Boomer Esiason Foundation encourages college students who have cystic fibrosis to submit their application for the exciting Sacks for CF Scholarship program. The application deadline is January 11, 2013. Continue reading The Sacks for CF Program has returned for the 2012-2013 NFL Season
While the holiday season is a time for joy, laughter and good food, it can also be a challenging time for people with cystic fibrosis (CF) to find healthy and nutritious meal options at holiday gatherings. To help prepare for this year’s celebrations, the CFChef program is pleased to announce Continue reading CFChef Winter Holiday Recipe Contest Winners
CF Wind Sprints is a series of brief videos addressing a variety of topics relevant to living with CF, including traveling, nutrition, exercise, and treatments. http://www.youtube.com/watch?feature=player_embedded&v=sJI5vX7lhs8
As in his previous Windsprint where Jerry discussed the benefits of several fruits and fruits snacks Continue reading CF WINDSPRINTS: EPISODE 31 – NUTS