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Proteostasis Therapeutics Presents Preclinical Data on Parkinson’s Disease and Cystic Fibrosis Targets at EMBO Conference

Proteostasis Therapeutics, Inc., a company developing novel therapeutics that regulate protein homeostasis to improve outcomes for patients with neurodegenerative and orphan diseases, today presented data on the Company’s preclinical targets for Parkinson’s disease and cystic fibrosis at a Continue reading Proteostasis Therapeutics Presents Preclinical Data on Parkinson’s Disease and Cystic Fibrosis Targets at EMBO Conference

Adults with CF Need Close Colon Cancer Screening

With cystic fibrosis (CF) patients now living well into adulthood they are at risk for developing adenomatous colon polyps and should be screened early and often, researchers said here.

In a single center study where adult cystic fibrosis patients underwent screening colonoscopies, Continue reading Adults with CF Need Close Colon Cancer Screening

The Importance of Understanding

I just got to visit with a good friend from out of town who has CF. There is something to be said for being understood so well by another person. For someone to totally “get it” usually only happens when talking to another person who has something in common, in my case, cystic fibrosis and Continue reading The Importance of Understanding

Help us by Reviewing CF Roundtable for Great NonProfits 2013

The GreatNonProfits 2013 Top-Rated Awards are ready for nominations. Please help us earn a spot this year by entering your positive reviews. We could get the chance to meet with leaders in philanthropy and technology at the annual Technology for Social Good event in Silicon Valley, or Continue reading Help us by Reviewing CF Roundtable for Great NonProfits 2013

CF Podcast #121: Katie O’Grady – Playing High School Sports with CF

In this episode, we talk with Katie O’Grady, a 17-year old senior at North Rockland High School in New York. Katie is an avid runner and is a member of the Red Raider varsity cross country and track teams. She talks about the role sports and exercise have played in managing her CF, but Continue reading CF Podcast #121: Katie O’Grady – Playing High School Sports with CF

The Power Of Two” Is Coming To TV May 22!

Everyone in the cystic fibrosis community knows that it takes power to fight CF.  Twin sisters with CF Ana Stenzel and Isa Stenzel Byrnes, and other members of the CF community, show what power can do in the documentary film “The Power Of Two.”  Called “compelling” and “poetic” by Continue reading The Power Of Two” Is Coming To TV May 22!

The Winner of the Jacoby Angel Award is Jerry Cahill

Jerry Cahill has been awarded the prestigious Jacoby Angel Award from the United States Adult CF Association (USACFA) for being a person with CF who is making a difference in the lives of one or more people with or without CF. The award is named after Dr. Jack Jacoby who was a CF Continue reading The Winner of the Jacoby Angel Award is Jerry Cahill