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Xbox viable exercise for cystic fibrosis

INTERACTIVE gaming consoles, such as the Xbox Kinect could prove to be viable alternatives to traditional forms of exercise for adults with Cystic Fibrosis (CF), a recent WA study has found.

Collaborative research by Curtin University’s School of Physiotherapy, the Curtin Health Continue reading Xbox viable exercise for cystic fibrosis

Run for Team Boomer in the 2013 NEW YORK CITY MARATHON

and  Join the Fight to Cure Cystic Fibrosis! Registration Deadline: August 15 http://www.teamboomer.org/2013-ing-nyc-marathon/

Join Team Boomer as we RUN to CURE CF. http://www.teamboomer.org/ Continue reading Run for Team Boomer in the 2013 NEW YORK CITY MARATHON

Predictors for future cystic fibrosis-related diabetes by oral glucose tolerance test

Journal of Cystic Fibrosis, 06/28/2013  Clinical Article

Schmid K et al. – An annual oral glucose tolerance test (OGTT) has become part of standard care in cystic fibrosis (CF) to screen for CF–related diabetes (CFRD). The objective of this study was to determine predictors for future CFRD derived from an OGTT. In this large study, IFT, IGT, and Continue reading Predictors for future cystic fibrosis-related diabetes by oral glucose tolerance test

Cystic Fibrosis Genes & Gene Therapy–June 29th 13:00 (BST)

The latest cystic fibrosis research summarized by the study authors.  
No spin, no headlines. 
More added daily.
 cfunite.org/research

The next live CFUnite event, with added opportunities for interaction, will discuss the genes and genetics of cystic fibrosis.  What does dF508, G551D and all the other numbers actually mean? Continue reading Cystic Fibrosis Genes & Gene Therapy–June 29th 13:00 (BST)

CF Podcast #123: Exercising with CF

“If it’s not important, breathe it out. What’s important, breathe it in.”

In this video, Emily Schaller, a 31-year old living, breathing, and succeeding with cystic fibrosis shares her life-changing relationship with exercise and her determination to spread awareness about Continue reading CF Podcast #123: Exercising with CF

For new Rhode Island firm, peptides hold hope for disease-altering cystic fibrosis treatments

It’s been nearly two and a half decades since the gene associated with the inherited disease cystic fibrosis was discovered, paving the way for disease-modifying drugs. In that time, only one such drug has been approved in the U.S. and Europe – Vertex’s Kalydeco. And that drug is only Continue reading For new Rhode Island firm, peptides hold hope for disease-altering cystic fibrosis treatments

Cystic Fibrosis: New Assay May Help Individualize Care

A rapid and quantitative assay for assessing function of the CFTR gene using intestinal organoids has been developed, according to a study conducted by Johanna F. Dekkers, MS, from the University Medical Center in Utrecht, the Netherlands, and colleagues. Continue reading Cystic Fibrosis: New Assay May Help Individualize Care

Boomer Speaks Out on Sarah Murnaghan and Juvenile Lung Transplantation

Recently, Sarah Murnaghan (10) and Javier Acosta (11), both children battling cystic fibrosis, won federal lawsuits to be placed on the adult lung transplant list. The organ donation allocation system does not usually allow children under the age of 12 to be placed on the adult list, making it less Continue reading Boomer Speaks Out on Sarah Murnaghan and Juvenile Lung Transplantation

Tips For Dining Out For People with Cystic Fibrosis

So, I’ve always been a bit squeamish about certain things.  As a young child, it was bugs, worms, snakes and food that I considered gross.  As I got older, add in items that weren’t as clean as they could be.  But, back in those days, there was no hand sanitizer.  You simply went to the restroom Continue reading Tips For Dining Out For People with Cystic Fibrosis