Blog

Reacting to Life, a guest blog by Kathy Russell

Sometimes I am surprised by my own reactions to life. Yesterday was one of those times. I was going into the library and there was a man coming out. As I looked at him, I was astounded to see that he had a large safety pin through the septum of his nose. Continue reading Reacting to Life, a guest blog by Kathy Russell

Newest podcast with Bobby Bebber

In his latest podcast, Jerry Cahill talks with Bobby Bebber about how to deal with ALL the obstacles cystic fibrosis can present.

Bobby, 28, was diagnosed with cystic fibrosis at age two. Bobby has had three liver transplants and a kidney transplant, and he also has CF-related diabetes, Continue reading Newest podcast with Bobby Bebber

Chance to win CFChef by submitting your recipes

Submit your favorite cystic fibrosis – friendly recipes for a chance to claim the title of CFChef! As a part of the 2012 program expansion, Abbott launched two new CFChef recipe contests and is calling for “Cookout” and “Back-to-School” themed recipes by June 21, 2012 for a chance to win. Anyone touched by cystic fibrosis (CF) is encouraged to enter. Continue reading Chance to win CFChef by submitting your recipes

CFTR2 – a fabulous new resource on gene mutations is now available for public use!

Collaborators from several institutions around the world and the US Cystic Fibrosis Foundation are excited to announce that a new resource – CFTR2 – is now available for public use!  This is the result of an international research collaboration to provide information about specific Continue reading CFTR2 – a fabulous new resource on gene mutations is now available for public use!

Jerry Cahill’s interview is up!

A new feature story posted on the Boomer Esiason Foundation website relates the story of BEF volunteer Jerry Cahill’s recent double-lung transplant. Following is an excerpt from the article, which offers a behind-the-scenes look at Cahill’s journey and relates his plans for life post-transplant.

Double-Lung Transplant Has ‘Humbled Me Dramatically,’ Cahill Says

When Jerry Cahill’s medical team tried to activate him on the lung transplant waiting list more than a year ago, he refused.

Cahill, 55, already had been on the list for more than a decade, added to it back when patients were assigned a number and received a transplant when that number finally came up – Continue reading Jerry Cahill’s interview is up!

New Video for The Drive at 35 by Andy Lipman

Andy Lipman is so happy to be able to share his latest project for helping to raise awareness of cystic fibrosis with you. He and his team have put a lot of hard work into a making a video, which will show the world the life of a cystic fibrosis patient and why it’s so important to find a cure.

Please make CF stand for Cure Found.

Check out the video at: http://www.andylipman.com/video.cfm

‘You Cannot Fail’ Book Now Available on Amazon.com

You Cannot Fail: You Are the Hero of Your Own Story — an inspirational book of personal reflections by Boomer Esiason Foundation Volunteer Jerry Cahill — now is available for sale on Amazon.com.

Fifty-five-year-old Cahill, who has cystic fibrosis and underwent a double-lung transplant last month, is a popular and recognizable figure in the CF community. Continue reading ‘You Cannot Fail’ Book Now Available on Amazon.com

CF Wind Sprint 25: Club Cystic Fibrosis on its website

The Boomer Esiason Foundation has posted CF Wind Sprint 25: Club Cystic Fibrosis on its website.

Club CF is a valuable online resource featuring stories about adults around the country who are living, breathing and succeeding with cystic fibrosis.

Despite the popularity of social media, there are few online venues where people with CF actually Continue reading CF Wind Sprint 25: Club Cystic Fibrosis on its website

The Elizabeth Nash Foundation awards scholarships to assist persons with Cystic Fibrosis

The Elizabeth Nash Foundation (ENF) awards scholarships to assist persons with Cystic Fibrosis
(CF) to pursue undergraduate and graduate degrees.  Grants ranging from $1,000 to $2,500 are
awarded annually.  Since the program’s inception in 2005, seventy-eight grants have been awarded. Continue reading The Elizabeth Nash Foundation awards scholarships to assist persons with Cystic Fibrosis

Check out Jerry Chaill’s Podcast with Rick Lerz

In his latest podcast, Jerry Cahill interviews Rick Lerz about what life has been like after his double-lung transplant.

Forty-five-year-old Rick grew up Queens, N.Y., and was diagnosed with cystic fibrosis at six months. He now is married to his caring wife, Leigh, and is the proud father of their 15-year-old daughter, Marty.

Continue reading Check out Jerry Chaill’s Podcast with Rick Lerz