Today is my dog Penny’s birthday! She turned five years old today. Penny is a miniature schnauzer, and she brings me a lot of joy. She is always happy to see me when I get home, and she jumps like a rabbit when I’m getting her dinner for her, because she is just SO excited she can barely contain Continue reading
U.S.A.C.F.A. to Observe Rare Disease Day
(United States) U.S.A.C.F.A. will join the National Organization for Rare Disorders (NORD) and others around the world in observing Rare Disease Day on February 29. The purpose is to focus attention on the needs of patients and families affected by rare diseases.
“This is a global observance,” said Peter L. Saltonstall, president and CEO of NORD. “Individuals and organizations around the world will all be sharing stories of how rare diseases affect their lives.” Continue reading
I Survived Leaving My Comfort Zone
I am home from my travels safe and sound. It was a great trip and a great learning experience.
I did not have to worry about being assisted at the airport. Overall, Delta did a great job of having my wheelchair ready when I needed it and they did everything possible to make going through security easy for me. The flight attendants were both helpful and my seat mates were nice. Despite having a little bit of turbulence I remained calm and relaxed on both flights. Continue reading
Posted in CF and exercise, CF and Traveling, Uncategorized
Tagged cf, cf and exercise, cystic fibrosis, living with cf, traveling with CF
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SSI Rules Regarding Cars
In order to be eligible for Supplemental Security Income (“SSI”) benefits , a beneficiary must meet both income and resource limits in addition to meeting certain medical requirements. SSI eligibility also means eligibility for Medicaid. If the person is not eligible for SSI then the person is not eligible for Medicaid. Most states will not provide Medicaid to individuals over the age of 18 unless the individual is also receiving SSI benefits. It is important to understand all the eligibility rules for SSA programs. Continue reading
Posted in CF Legal Rights, CF Social Security Benefits
Tagged medicaid, ssi benefits
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New TSA Hotline For Fliers With Disabilities
In December of 2011, the TSA introduced a toll-free helpline that answers questions for fliers with disabilities and medical conditions. Continue reading
Posted in CF and Traveling, CF Legal Rights
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Stepping Out of My Comfort Zone
By the time you read this I will have flown for the first time since 2007. I will also be traveling alone for the first time ever. This is a big deal because of my current health status. My FEV1 is around 28%. I use o2 24/7 (3-4 lpm) and a Bi-Pap at night. Continue reading
Posted in CF and Traveling
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SSDI Information
As my prior post discussed, Social Security Disability Insurance (SSDI)and Supplemental Security Income (SSI) have different non-medical requirements. Continue reading
Posted in CF Legal Rights
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Free online Webinar for people with CF
At PMD Healthcare our philosophy is simple: “Personal medical devices for a healthier you.”
Our live free patient webinars are designed to help educate and empower people who suffer from CF and other lung diseases. Continue reading
Posted in Uncategorized
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