I am one of CF Roundtable’s new bloggers. My name is Andrea Eisenman and my username is Andreaeyes. I am in the process of learning how to blog so bear with me while fumble a bit.
I just returned from my annual check up with my transplant pulmonologist at NY Presbyterian. Had a CT scan, basic PFT, blood work, echo-cardiogram and my first ever 6-minute walk test. A lot to do for a visit. Thank goodness it is only once a year. The waiting between tests is the killer here. And actually, my previous transplant pulmonologist never had me do these tests so I was leery at first.
Luckily, my test results were all fine, still waiting on my echo. I am just so grateful to be alive after 11 years post-transplant surgery. My PFTs actually increased 10%. So awesome! It helps to keep me motivated. And due to my high-ish creatinine, my cyclosporine was lowered a slight bit. Every little bit helps.
The tests confirmed my belief that I am indeed feeling well, all things considered. Every day is different but all in all, after 11 years, I am feeling well if I eat properly, exercise 5-6 days a week and take a nap daily. It is a true balancing act. Biggest reason why I do not work full-time any more. If I had to work, I could never manage my health properly. There are days I feel I just need to stay at home and rest. By not working, I can listen to my body and not over do it. I am thankful for the ability to care for myself this way and keep busy with my health care. It IS my full-time job. When not consumed by that, I volunteer for Cf Roundtable as editor, art director and webmaster and for NY Organ Donor Network (NYODN) to enlighten people about the importance of organ donation.
When I am not volunteering, I love to cook and hope to share some recipes here. I also love to bike and play tennis when I feel up to it. My husband, mom, good friends and 2 dogs keep me going.