Author Archives: Agenie
May is CF Awareness Month
May is CF Awareness Month and there are many ways YOU can help increase awareness.
“This is Just What I do”
I just read this amazing blog post by Christine Kane (http://christinekane.com/blog/). As I read it, I couldn’t help but think of how this applies to my life with CF perfectly.
Posted in CF and exercise, living and dealing with cf, Uncategorized
Tagged cf and exercise, cystic fibrosis
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“You Are Such an Inspiration!”
I recently had a discussion with friends about being told I am an inspiration. This topic came up because I was telling them how people have come up to me at the gym while I am working out (on oxygen) and … Continue reading
Posted in living and dealing with cf
Tagged aging with CF, cf, cf and exercise, cystic fibrosis, living with cf
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These Times They Are A Changin’
As many of you have read, Kalydeco was recently announced as the first drug to treat the underlying cause of CF. This is big news in our community! I was 19 when the found the CF gene. What an exciting … Continue reading
I Survived Leaving My Comfort Zone
I am home from my travels safe and sound. It was a great trip and a great learning experience. I did not have to worry about being assisted at the airport. Overall, Delta did a great job of having my wheelchair ready when … Continue reading
Posted in CF and exercise, CF and Traveling, Uncategorized
Tagged cf, cf and exercise, cystic fibrosis, living with cf, traveling with CF
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Stepping Out of My Comfort Zone
By the time you read this I will have flown for the first time since 2007. I will also be traveling alone for the first time ever. This is a big deal because of my current health status. My FEV1 … Continue reading
Posted in CF and Traveling
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A Shake A Day
I do not have a lot of digestion issues as far as my CF is concerned. As long as I take my enzymes regularly…I am, well, regular. I have, however, always had to work at maintaining my weight.
Ask the Board – Holiday Health Care
As the holidays approach, what are some of your tips for balancing caring for your health and participating in all the extra activities surrounding the holidays? Taking care of myself comes first. Without good health I won’t be able to … Continue reading
Caring for Yourself and Someone Else
As I am getting older, I am experiencing times when I need to be the caretaker for someone else. Sometimes it is for a few days, like if my hubby has a cold, and sometimes it can be a year, … Continue reading
Posted in CF and Aging, living and dealing with cf, Uncategorized
Tagged aging with CF, caretaker, cf, cystic fibrosis, IV's
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Life is a Special Occasion
I just saw that on a Hallmark bag. And given the fact I just turned 41, I would have to agree. I don’t know about all of you but I grew up knowing people with CF die and they tend to die … Continue reading
