30th National Cystic Fibrosis Family Education Conference
Soaring to New Heights

July 28 – July 30, 2017
Pullman San Francisco Bay (formerly Sofitel), Redwood City, California

 Join us for CFRI’s 30th National Cystic Fibrosis Family Education Conference!

Updates on New Therapies • Presentations on Vital CF-Related Topics by Nationally Renowned Presenters • Access to Pharmaceutical and Medical Technology Representatives • Support Groups and Workshops • Receptions & Awards • The Latest Updates on CFRI-Funded Research •Opportunities to Socialize with Others from the CF Community

Conference Speakers:
Isabel Stenzel-Byrnes, LCSW,
Redwood City, CA: Growing Up With CF – Belonging and Identity
Cathy Chacon, RN, National Jewish Health: Addressing Multi-Faceted Health Issues Beyond CF
John Clancy, MD, Cincinnati Children’s Hospital: The CF Pipeline
Lucas Hoffman, MD, PhD, University of Washington – New Strategies to Treat CF Pathogens
John Mark, MD, Lucile Packard Children’s Hospital, Stanford: Adjunctive Therapies and CF
Ray Poole, MBA, Fort Thomas, KY: Perspectives from a CF Cornerman
Carol Power, RT, CF Center at Stanford: Respiratory Therapy – Options New and Old
Paul Quinton, PhD, UC San Diego: CFRI Funded Research: 40 Years of Progress
Kristin Riekert, PhD, Johns Hopkins School of Medicine: Adherence to CF Therapies
Karen Von Berg, DPT, Johns Hopkins Hospital: The Role of Physical Therapy in CF

CFRI-Funded Research Track Speakers:
Paul Beringer, PharmD,
University of Southern California
Guillermo Flores Delgado, PhD, University of California San Diego
Peter Haggie, PhD, University of California San Francisco
Noud van Helmond, MD, Mayo Clinic
Andrey Malkovskiy, PhD, Stanford University Medical Center
Danieli Salinas, MD, University of Southern California / Children’s Hospital Los Angeles

Registration Information:
Early Bird Registration (received by CFRI on or before 6/28/17) – $185 per person.

Regular Registration (received on or after 6/29/17) – $215 per person.

Registration includes meals, reference materials, receptions, and access to presentations and support groups.

Pullman San Francisco Bay is offering CFRI conference attendees a phenomenal room rate of $119 per night, if reserved prior to July 14, 2017.

For more information, visit or call

Medical Safety for All is Our Priority
To ensure good health for all, please use proper hygiene practices. Participants/guests with CF must adhere to CFRI’s Infection Control Guidelines. See for specifics.

Generously Sponsored By: Genentech, Vertex Pharmaceuticals, Gilead Sciences, Chiesi USA, AbbVie, and the Boomer Esiason Foundation


CFRI Offers its 22nd CF Summer Retreat!
“Outside Expectations”
July 30 – August 5, 2017
Vallombrosa Center, Menlo Park, California

 CFRI’s Summer Retreat provides a safe and welcoming environment aimed at enhancing positive coping skills, social support and education for people who share common experiences with CF. Adults with CF, 18 years and older, as well as their family members and friends, are encouraged to register. Using educational seminars, art workshops, daily exercise sessions such as U-Jam and yoga, and fun group-bonding activities such as talent shows and games, the CF Summer Retreat helps adults expand their healing toolbox beyond the day-to-day medical regimen. The retreat encourages those with CF to live better by becoming empowered in self-management of all aspects of CF care. Please join us!

Cost to attend: $90 for the full week, or $18/day, including all activities and meals

Accommodations at Vallombrosa: $60 per participant/night

Scholarships available

For more information, or to register, go to, or call 1.855.237.4669.

 Generously sponsored by AbbVie and Gilead Sciences

CFRI is a pioneer in creating safe places for CF patients to socialize by following a strict cross infection policy: For the safety of participants, Retreat attendees must be at least 18 years old, must complete a sputum culture after June 15, 2017, and must submit CFRI’s Medical Release Form and Cross-Infection Liability Release Form to CFRI‘s office by July 27, 2017. Please download forms at