You are invited to attend a free web-cast event SATURDAY, APRIL 22, 2017

RARE LUNG DISEASES PATIENT EDUCATION DAY ON CYSTIC FIBROSIS, CHILDREN’S INTERSTITIAL LUNG DISEASE AND PRIMARY CILIARY DYSKINESIA

REGISTER NOW AT:
https://attendee.gotowebinar.com/register/6993341835513746691

This event is co-sponsored by the American Thoracic Society, the Cystic Fibrosis Foundation, the Children’s Interstitial Lung Disease Foundation and the Primary Ciliary Dyskinesia Foundation in association with the Cystic Fibrosis Center, Mt. Sinai Beth Israel, New York. This patient education day is being held in conjunction with the “Cystic Fibrosis Week at the ATS” — a part of the Lung Disease Week at the ATS.

PROGRAM

9:45-10:00         Welcome from the ATS

– Mr. Courtney White

Welcome from Mt. Sinai Beth Israel

– Patricia Walker, MD and Maria             Berdella, MD

10:00-10:35       Update on chILD Syndrome

– Elizabeth K. Fiorino, MD

10:35-11:05       Health Insurance Options in Uncertain Times

– Beth Sufian, JD

11:05-11:35       Update on Primary Ciliary Dyskinesia

– Adam Shapiro, MD

11:35-12:05       Making the Most of your Clinic Visits and Accessing Help

– Amy Purdy, LMSW

12:05-12:30       Lunch

12:30-1:05         Cystic Fibrosis – New Treatments are Within Reach

– Jennifer Taylor-Cousar, MD, MSCS

1:05-1:35           My Secrets to Success – Living a Great Life with a Chronic
Condition

– Piper Beatty Welsh, JD

1:35-2:00         Questions & Answers

SPEAKERS

ELIZABETH K. FIORINO, MD, Attending Physician, Division of Pulmonary Medicine, Cohen Children’s Medical Center of New York

BETH SUFIAN, JD, Sufian & Passamano, L.L.P., Director of the CF Legal Information Hotline, Director of the CF Social Security Project

ADAM SHAPIRO, MD, Assistant Professor Pediatric Respirology, Montreal Children’s Hospital,McGill University Health Centre

AMY PURDY, LMSW, Social Worker, Mt. Sinai Beth Israel Cystic Fibrosis Center

JENNIFER TAYLOR-COUSAR, MD, MSCS, Associate Professor of Medicine & Pediatrics, University Colorado, Director of Clinical Research, Adult CF Program National Jewish Health

PIPER BEATTY WELSH, JD, National Strategic Collaborations Liaison, CF Foundation

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