I was there. Yes, I went. I participated in the largest protest in the country. And it was AMAZING!
We like to avoid politics here at CFR so I will not voice any of the reasons I went. What I do want to do is talk about my experience as a person with CF.
I went down with 5 other women, one of whom I knew, the rest I did not. I met them briefly a few weeks prior just to discuss logistics etc. So for me this was totally and completely out of my comfort zone. I would be exposing these women to the private side of my life, the not-so-healthy side that I usually hide from strangers and acquaintances. But here I was about to spend 3 days/2 nights in a hotel room with 5 other women. Not going to lie, there were a few days when I was tempted to give my money for the room and bail. After all, Boston was having a protest gathering as well, and that was easy to get to. But in the end I went to DC.
I knew the day was going to be long and tiring. I expected it. I packed my portable neb and extra meds and was content knowing I could neb whenever I needed it. At first it was weird. I kind of hid in the corner for my first needed treatment, by myself, hiding behind my camera. It felt weird to be exposed like that. But I needed the meds before we started the march. We had just stood through a few hours of rallying. It was time to get moving.
As we made our way down the streets of DC I could feel my lungs tightening. At this point it had been a few hours again and I was in need a more meds. But there was nowhere to hide. If I wanted to have meds done before we went out to eat I needed to just do them. So I did. I nebbed while walking in the crowd. And I recorded it on FB live. The link will hopefully take you to the video but I am also including a picture here (you can see the Washington Monument behind me!). It wasn’t all that bad doing a treatment that out in the open. I got a few looks, but for the most part I don’t think people even really noticed. And for all I know they may have thought I was just vaping!
In the end I had an amazing time, and even though I brought back more than I wanted to (the flu!), it was entirely worth it.