The Women’s March on Washington

I was there.  Yes, I went.  I participated in the largest protest in the country.  And it was AMAZING!

We like to avoid politics here at CFR so I will not voice any of the reasons I went.  What I do want to do is talk about my experience as a person with CF.

I went down with 5 other women, one of whom I knew, the rest I did not.  I met them briefly a few weeks prior just to discuss logistics etc.  So for me this was totally and completely out of my comfort zone.  I would be exposing these women to the private side of my life, the not-so-healthy side that I usually hide from strangers and acquaintances.  But here I was about to spend 3 days/2 nights in a hotel room with 5 other women.  Not going to lie, there were a few days when I was tempted to give my money for the room and bail.  After all, Boston was having a protest gathering as well, and that was easy to get to.  But in the end I went to DC.

I knew the day was going to be long and tiring.  I expected it. I packed my portable neb and extra meds and was content knowing I could neb whenever I needed it.  At first it was weird.  I kind of hid in the corner for my first needed treatment, by myself, hiding behind my camera.  It felt weird to be exposed like that.  But I needed the meds before we started the march.  We had just stood through a few hours of rallying.  It was time to get moving.

As we made our way down the streets of DC I could feel my lungs tightening.  At this point it had been a few hours again and I was in need a more meds.  But there was nowhere to hide.  If I wanted to have meds done before we went out to eat I needed to just do them.  So I did.  I nebbed while walking in the crowd.  And I recorded it on FB live.  The link will hopefully take you to the video but I am also including a picture here (you can see the Washington Monument behind me!).  It wasn’t all that bad doing a treatment that out in the open.  I got a few looks, but for the most part I don’t think people even really noticed.  And for all I know they may have thought I was just vaping!

In the end I had an amazing time, and even though I brought back more than I wanted to (the flu!), it was entirely worth it.

6 thoughts on “The Women’s March on Washington”

  1. Go Amy! Great post and just in time to spread the word for the International Women’s Day tomorrow, March 8th. Although many of us can’t physically be there, we can wear red in solidarity. Thank you for sharing your experience. You’re a rock star!

    1. Thanks Jeanie! I had completely forgotten about tomorrow, so I am glad I scheduled this for today! Happy accident.

  2. Amy,
    I cannot really type quickly because my eyes are full of tears. You are so brave and such an inspiration!!
    I do not think it is political to care about decisions made by our government that will affect our ability to live a quality life with access to health insurance coverage, medication and treatment. It is important for people with CF to speak out for ourselves and each other. CFR is a place to share our feelings. No one should be afraid to so.

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