From Sue Landgraf, Exectuive Director of CFRI
Urgent Call to Action! Congress is beginning to discuss proposals for future healthcare legislation. Proposals thus far do not include many of the protections that are contained within the Affordable Care Act (ACA), which would be catastrophic for many members of the cystic fibrosis (CF) community. As our elected officials debate the next step, it is critically important that they hear from you about what must be included in any revised legislation to protect you and others impacted by cystic fibrosis or any other health condition.
Thank you for writing today, urging your elected officials to maintain protections for those with pre-existing conditions such as CF, and to forego proposals that will make it extremely challenging for those with CF – or any pre-existing condition – to secure affordable health coverage. This letter will also be sent to your state representatives, to inform them of your views on this vitally important issue.
Please urge your elected officials to maintain protections for the cystic fibrosis and rare diseases communities in future healthcare legislation!