Making it Matter Ep. 14 – Advocacy and Other Things
After our week off, Julia and I come back with lots to talk about. Right after her NYC marathon effort, Julia shipped off to Europe to tour a children’s CF center in the Netherlands. She talks about how much different care is than it is in the US.
I go on to talk about my recent experience speaking at the Johns Hopkins Medicine CF Education Day. Finally, we finish up discussing how I plan on protecting my feeding tube this weekend on a paintball trip.
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