Like many of our readers, I have an abundance of CF stuff. Between IV supplies, inhaled medications, tubing for nebulizers, nebulizers for home and travel, neb cups, oral medications and diabetic supplies I feel like I live in a hospital. And since organizing all of the “junk” we have can be overwhelming I decided to share what I do. This does not mean that I think my system is great, perfect or should be replicated at all. This is just to give readers an idea of what others do, and allow them to pick and choose what they think may work for them, if they need ideas. Here is a picture of my rolling cart. It holds my enzymes, hormone patches and diabetic testing supplies in the top drawer. The second drawer holds all my port flushing supplies like saline, heparin and needles. The third drawer is a “junk” drawer and holds some non-CF stuff as well as things like my accapella, peak flow meter and some things I like to bring with me when I am hospitalized. You will see next to the cart a basket of oral medications. I keep all my non-enzyme pills in here for easy access to fill my weekly pill sorter on Saturdays. On the top of the cart is my nebulizer with basket of neb cups and my open box of Duoneb.
Here is a picture of my desk and vest area. The vest is under my desk hidden away and makes a great foot stool when not in use. The tubes can be annoying when they flop out so I am still looking for a better way to store the vest. Space is limited so this is about all the room I have right now. You may also notice the Duoneb box on the top of the desk. This is my “trash” box for the vials. And next to it is of course some enzymes and my daily sugar log. (the ear drops are my dog’s!) Under the desk overhang I have my daily pill sorter and my meter to check my sugars. Below that in the little side section I have my sharps box and used neb cup container.
Here is an overall picture of the area. I don’t know how well you can see but above my printer I have a white board. On the whiteboard I list everything I need to flush my port and how many of each I have. I also have the date of my last flushing so I can’t forget. This way when the IV company calls me I can say I need this and this but I am OK in this and this.
And this is my medical drawer in one of our bureaus. I have the rest of my IV supplies in here like dressing kits and alcohol wipes. Plus I keep my Duoneb and saline boxes in here. Also some things like tape and heparin that I use for IV antibiotics and not for flushings (I should probably check the expiration date on those opps!).
As you can see the amount of stuff I have is actually fairly light compared to some. But I don’t like to keep too much stock. And I rarely go on home IVs as I prefer to do my clean-outs inpatient so my IV supplies are limited to port flushings. For me what I have works. And there are still the random enzyme bottles around the house and miscellaneous bottles of things here and there.
I hope this posts helps anyone who is struggling to find away to deal with the necessary clutter that accompanies CF!